High Patient Willingness to Grant Broad Consent for Real-World Data Use in Rheumatology—Implications for Real-World Data Platform Governance: Cross-Sectional Study - Scorecard - MDSpire
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High Patient Willingness to Grant Broad Consent for Real-World Data Use in Rheumatology—Implications for Real-World Data Platform Governance: Cross-Sectional Study
Clinical Scorecard: Patient Readiness to Provide Extensive Consent for Utilization of Real-World Data in Rheumatology: Insights for Governance of Data Platforms—A Cross-Sectional Analysis
At a Glance
Category
Detail
Condition
Key Mechanisms
Target Population
Patients with various types of inflammatory rheumatic diseases, including rheumatoid arthritis, psoriatic arthritis, and ankylosing spondylitis.
Care Setting
Key Highlights
Broad consent is essential for secondary use of RWD and biospecimens, impacting patient trust and data governance.
Guideline-Based Recommendations
Diagnosis
Management
Implement a comprehensive data management framework for RWD, including data security measures and patient privacy protocols.
Monitoring & Follow-up
Risks
Patient & Prescribing Data
Patients consented to share clinical and sociodemographic data for research, which informs treatment decisions and outcomes.
Clinical Best Practices
Facilitate patient understanding of consent processes and the implications of data sharing on their care.
by Jutta G Richter, Antonia Becker, Tim Filla, Hasan Acar, Waldemar Ockert, Dominykas Kriauciunas, Edith Aggarwal, Markus Schröder, Ralf Hansen, Jörg HW Distler, Matthias Schneider
