Bowel cancer care in individuals with an intellectual disability: a population-based cohort study of symptoms, diagnostic pathways, treatment and survival - Report - MDSpire

Bowel cancer care in individuals with an intellectual disability: a population-based cohort study of symptoms, diagnostic pathways, treatment and survival

  • By

  • Oliver John Kennedy

  • Umesh Chauhan

  • Louise Gorman

  • Paul Lorigan

  • Samuel W. D. Merriel

  • Antonia Perumal

  • Tjeerd Van Staa

  • Alison Wright

  • Darren Mark Ashcroft

  • May 20, 2026

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Management of Bowel Cancer in Patients with Intellectual Disabilities

Overview

This study investigates the risk and management of bowel cancer in individuals with intellectual disabilities (ID), revealing significant disparities in diagnosis, treatment, and survival outcomes. It highlights the need for improved healthcare access and tailored interventions for this vulnerable population.

Background

Intellectual disabilities affect 1%–3% of the global population, leading to unique healthcare challenges and significant health inequalities. Individuals with ID are at a higher risk for bowel cancer, yet they often face barriers in accessing timely screening and treatment, contributing to poorer health outcomes. Addressing these disparities is crucial for improving the quality of care and survival rates in this population.

Data Highlights

No numerical data available in the source material.

Key Findings

  • Individuals with ID have a higher risk of bowel cancer and related mortality.
  • Participation in bowel cancer screening is significantly lower among adults with ID (50.3%) compared to the general population (66.8%).
  • Late-stage diagnoses and emergency presentations are more common in individuals with ID.
  • Healthcare services often fail to adequately investigate bowel cancer symptoms in patients with ID.
  • There is a notable reduction in life expectancy for individuals with ID, emphasizing the need for better cancer care.

Clinical Implications

Healthcare providers must recognize the unique challenges faced by patients with intellectual disabilities in the context of bowel cancer. Implementing reasonable adjustments and enhancing communication can improve screening uptake and treatment outcomes for this population.

Conclusion

The findings underscore the urgent need for targeted interventions to address the healthcare disparities experienced by individuals with intellectual disabilities, particularly in the context of bowel cancer management.

Related Resources & Content

  1. Giblon et al., ASCO Post, 2025 -- Eliminating Barriers to Care for Patients With Intellectual and/or Developmental Disabilities
  2. Linking Gastrointestinal Symptoms to the Use of Specialty Care in Survivors of Colon Cancer: A Cohort Analysis, 2024
  3. Pathological Characteristics and Outcomes of Metastatic Neoplasms in the Small Intestine, Journal of Gastroenterology, 2025
  4. NCCN Guidelines® Insights: Colorectal Cancer Screening, Version 1.2024, PubMed
  5. Influence of Specific Gastrointestinal Symptoms on Quality of Life Among Individuals with Midgut Neuroendocrine Tumours
  6. Metastatic colorectal cancer: ESMO Clinical Practice Guideline for diagnosis, treatment and follow-up
  7. Localised rectal cancer: ESMO Clinical Practice Guideline for diagnosis, treatment and follow-up
  8. NCCN Guidelines® Insights: Colorectal Cancer Screening, Version 1.2024 - PubMed

Original Source(s)

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