Clinical Report: Enhancing the Role of Clinical Research Coordinators in FTD Studies
Overview
A survey of Clinical Research Coordinators (CRCs) in frontotemporal degeneration (FTD) research revealed significant training deficiencies, particularly in genetics, symptom management, and brain donation.
Background
Frontotemporal degeneration (FTD) encompasses a group of neurodegenerative disorders that significantly impact behavior, communication, and motor function. The role of Clinical Research Coordinators (CRCs) is crucial in FTD research, as they are often the primary contact for participants and their families. However, the adequacy of CRC training and job satisfaction has not been systematically evaluated.
Data Highlights
Finding
Percentage
CRCs feeling insufficiently prepared
62%
Key Findings
62% of CRCs reported feeling insufficiently prepared for their roles.
Key areas of training deficiency included genetics, symptom management, and brain donation.
Most CRCs had over 3 years of experience in their roles.
AFTD is developing modular training to enhance CRC competency.
Clinical Implications
The findings highlight the need for structured training programs for CRCs to improve their competency in managing FTD studies. Enhanced training may lead to better participant experiences and retention in clinical trials.
Conclusion
The study underscores the importance of adequate training and support for CRCs in FTD research to ensure effective participant engagement and retention.
Researchers compared full‐pressure and low‐pressure external counterpulsation during a 12‐month trial in patients with clinically diagnosed early Alzheimer disease.
