Geographical and Language-Based Factors Associated with Neurodevelopmental Follow-Up in Children with Congenital Heart Disease - Report - MDSpire

Geographical and Language-Based Factors Associated with Neurodevelopmental Follow-Up in Children with Congenital Heart Disease

  • By

  • Lorena Galvan

  • Marshall Brown

  • Marnina Gottesman

  • Melissa Hathaway

  • Titus Chan

  • June 29, 2026

  • 0 min

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Influence of Geographic and Linguistic Factors on Neurodevelopmental Monitoring

Overview

This study investigates the impact of geographic and linguistic factors on attendance at cardiac neurodevelopmental clinics (CNC) for pediatric patients with congenital heart disease (cCHD).

Background

Children with complex congenital heart disease are at heightened risk for neurodevelopmental delays, making early identification and intervention crucial for improving long-term outcomes. Current guidelines advocate for developmental evaluations at various stages, yet attendance at CNCs remains low, particularly among certain demographic groups.

Data Highlights

No numerical data or trial data was provided in the source material.

Key Findings

  • Approximately 30% of eligible patients attend CNCs during toddler age.
  • Factors such as scheduling, travel distance, and insurance status are associated with CNC attendance.
  • Language preference may influence attendance rates.
  • Community socioeconomic characteristics may correlate with CNC attendance.
  • In-hospital interpreter usage is hypothesized to improve attendance among patients with language preference.

Clinical Implications

Healthcare providers should consider geographic and linguistic factors when planning follow-up care for patients with cCHD. Enhanced interpreter services and community outreach may improve CNC attendance and ensure timely developmental evaluations.

Conclusion

Addressing the barriers to CNC attendance related to geographic and linguistic factors is essential for optimizing neurodevelopmental monitoring in pediatric patients with cCHD.

Related Resources & Content

  1. Author(s)/Org, Source, Year -- Title
  2. JAMA Network Open, 2023 -- Early Neurodevelopmental Outcomes in Children With Congenital Heart Disease
  3. BMJ Paediatrics Open, 2023 -- Assessment of the effects of ethnicity, home language, and socioeconomic status on neurodevelopmental performance in a multiethnic population
  4. Pediatric Cardiology, 2020 -- Assessment of Early Development and the Influence of Socioeconomic Factors on Neurodevelopment in Infants Diagnosed with Tetralogy of Fallot
  5. Neurodevelopmental Outcomes for Individuals With Congenital Heart Disease: Updates in Neuroprotection, Risk-Stratification, Evaluation, and Management: A Scientific Statement From the American Heart Association - PubMed
  6. Increasing the reach of developmental services among children with congenital heart disease | Pediatric Research
  7. Neurodevelopmental Outcomes for Individuals With Congenital Heart Disease: Updates in Neuroprotection, Risk-Stratification, Evaluation, and Management: A Scientific Statement From the American Heart Association - PubMed
  8. https://publications.aap.org/pediatriccare/pages/periodicity-schedule?utm_source=openai
  9. Characterizing neurodevelopmental follow-up attendance of children with congenital heart disease - PMC
  10. Predictors of Early Neurodevelopmental Outcomes for Children with Congenital Heart Disease: A Report from the Cardiac Neurodevelopmental Outcome Collaborative | medRxiv
  11. [Neurodevelopmental assessment of children with congenital heart disease: a Meta analysis based on the Bayley Scales of Infant Development and Wechsler Intelligence Scale] - PubMed
  12. Equity-Focused Interventions Improve Interpreter Use in the Pediatric Intensive Care Unit - PubMed
  13. Characterisation of neurodevelopmental and psychological outcomes in CHD: a research agenda and recommendations from the cardiac neurodevelopmental outcome collaborative - PMC

Original Source(s)

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