Diagnosis Gaps Mark Retinopathy Care - Report - MDSpire

Diagnosis Gaps Mark Retinopathy Care

A US systematic review found substantial losses across diabetic retinopathy screening, diagnosis awareness, referral, and follow-up.

  • By

  • Andrea Surnit

  • June 25, 2026

  • 6 min

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Clinical Report: Diagnosis Gaps Mark Retinopathy Care

Overview

A systematic review reveals significant gaps in diabetic retinopathy care in the US, with over 70% of patients unaware of their diagnosis. The study highlights low adherence rates to screening and follow-up care.

Background

Diabetic retinopathy is a common complication of diabetes that can lead to visual impairment and blindness. Understanding the gaps in diagnosis and care is crucial for improving patient outcomes and reducing the burden of this condition.

Data Highlights

MetricRangeMedian
Awareness of Diagnosis55% to 89%70%
Annual Screening Adherence3% to 69%47%
Biennial Screening Adherence16% to 79%59%
Linkage to Ophthalmic Care31% to 63%52%
Follow-up Adherence55% to 78%-

Key Findings

  • 70% of patients with photographic evidence of diabetic retinopathy were unaware of their diagnosis.
  • Annual screening adherence ranged from 3% to 69%, with a median of about 47%.
  • Linkage to ophthalmic care for diagnosed patients ranged from 31% to 63%, with a median of about 52%.
  • 55% to 78% of patients experienced lapses in recommended follow-up care.
  • Approximately 0.4% of patients with diabetic retinopathy had diabetic retinopathy-related blindness.

Clinical Implications

Healthcare providers should prioritize patient education regarding diabetic retinopathy to enhance awareness and adherence to screening. Improved communication and streamlined referral processes may help bridge the gaps identified in the care continuum.

Conclusion

The systematic review highlights critical gaps in diabetic retinopathy care in the US, indicating a need for enhanced strategies to improve patient awareness and adherence to screening and follow-up care.

Related Resources & Content

  1. BMJ Open, 2026 -- Diabetic retinopathy treatment cascade and care continuum in the USA: a systematic review
  2. Optometric Management — Recognizing the early signs of diabetic eye disease
  3. Retinal Physician — Retinal Disease Prevalence Study Reveals Gaps
  4. optometric management — Case Study: Electroretinography in Diabetic Retinopathy 
  5. Retinal Physician — Novel Methods and Diagnostic Tools in Diabetic Retinopathy Novel Methods and Diagnostic Tools in Diabetic Retinopathy Recommendations
  6. Optometric Management — Recognizing the early signs of diabetic eye disease
  7. Retinal Physician — Retinal Disease Prevalence Study Reveals Gaps
  8. 12. Retinopathy, Neuropathy, and Foot Care: Standards of Care in Diabetes—2026
  9. Diabetic Retinopathy Preferred Practice Pattern® - Ophthalmology
  10. Diabetic retinopathy treatment cascade and care continuum in the USA: a systematic review | BMJ Open
  11. The Effect of Intensive Treatment of Diabetes on the Development and Progression of Long-Term Complications in Insulin-Dependent Diabetes Mellitus | New England Journal of Medicine
  12. Anti-VEGF Injections vs. Panretinal Photocoagulation Laser Therapy for Proliferative Diabetic Retinopathy: A Systematic Review and Meta-Analysis
  13. Referral uptake after diabetic retinopathy screening with artificial intelligence-assisted care pathways: a systematic review and meta-analysis | npj Digital Medicine

Original Source(s)

Diagnosis Gaps Mark Retinopathy Care

  • by Andrea Surnit

  • June 25, 2026

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