Diagnosis Gaps Mark Retinopathy Care

A US systematic review found substantial losses across diabetic retinopathy screening, diagnosis awareness, referral, and follow-up.

By
Andrea Surnit
June 25, 2026
6 min

MDSpire News

Overview

A systematic review reveals significant gaps in diabetic retinopathy care in the US, with over 70% of patients unaware of their diagnosis. The study highlights low adherence rates to screening and follow-up care.

Background

Diabetic retinopathy is a common complication of diabetes that can lead to visual impairment and blindness. Understanding the gaps in diagnosis and care is crucial for improving patient outcomes and reducing the burden of this condition.

Data Highlights

Metric	Range	Median
Awareness of Diagnosis	55% to 89%	70%
Annual Screening Adherence	3% to 69%	47%
Biennial Screening Adherence	16% to 79%	59%
Linkage to Ophthalmic Care	31% to 63%	52%
Follow-up Adherence	55% to 78%	-

Key Findings

70% of patients with photographic evidence of diabetic retinopathy were unaware of their diagnosis.
Annual screening adherence ranged from 3% to 69%, with a median of about 47%.
Linkage to ophthalmic care for diagnosed patients ranged from 31% to 63%, with a median of about 52%.
55% to 78% of patients experienced lapses in recommended follow-up care.
Approximately 0.4% of patients with diabetic retinopathy had diabetic retinopathy-related blindness.

Clinical Implications

Healthcare providers should prioritize patient education regarding diabetic retinopathy to enhance awareness and adherence to screening. Improved communication and streamlined referral processes may help bridge the gaps identified in the care continuum.

Conclusion

The systematic review highlights critical gaps in diabetic retinopathy care in the US, indicating a need for enhanced strategies to improve patient awareness and adherence to screening and follow-up care.