Centering Equity in European Dementia Research: A Collaborative Perspective
Overview
The PANEUCARE consortium identifies regional disparities in dementia research participation and care across Europe, emphasizing the need for stronger cross-regional collaboration and culturally sensitive care practices.
Background
Dementia affects over 55 million individuals globally, with increasing prevalence in Europe due to an aging population. Despite advancements in dementia care research, notable regional differences exist in research visibility and participation, particularly among Southern and Eastern European countries. Addressing these disparities is crucial for developing equitable and inclusive dementia research agendas.
Data Highlights
No numerical data is provided in the source material.
Key Findings
Marked regional variation exists in dementia research participation and funding across Europe.
Common challenges identified include workforce shortages, delayed diagnosis, and caregiver burden.
Innovations such as community-based services and digital tools demonstrate resilience in local contexts.
Future research priorities include enhanced caregiver support and culturally sensitive post-diagnostic care.
The EQUITABLE framework was developed to guide inclusive dementia research design.
Clinical Implications
Healthcare professionals should recognize regional disparities in dementia care and research, which may affect access to services.
Conclusion
The PANEUCARE consortium highlights the importance of addressing regional disparities in dementia research to foster a more equitable European dementia care landscape.
by Maria Isabel Cardona, Clarissa Giebel, Anthony Scerri, Anthea Innes, Ninoslav Mimica, Osman Kučuk, T. Rune Nielsen, Jūratė Macijauskienė, Birute Bartkevičiūtė, Carolien Smits, Carmel Geoghegan, Soraya Moradi-Bachiller, Anne Marie Rokstad, Iva Holmerova, Elżbieta Trypka, Ágnes Egervári, Raluca Sfetcu, Marija Taneska, Péter Hegedűs, Iryna Shevchenko, Svetlana Iloski, Thanos Chatzikostopoulos, Jochen René Thyrian
