Autism service barriers for Latine children and their families: a participatory approach to adapting autism diagnostic care - Report - MDSpire

Autism service barriers for Latine children and their families: a participatory approach to adapting autism diagnostic care

  • By

  • Ann Marie Martin

  • Gisela Perez

  • Elizabeth Frances Battle

  • Aaliyah Saunders

  • Stephanie Pozuelos

  • Mary Ciccarelli

  • Angela Paxton

  • Carrie Leathers

  • Rebecca McNally Keehn

  • July 9, 2026

  • 0 min

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Clinical Report: Addressing Obstacles to Autism Diagnosis for Latine Children

Overview

This study identifies significant barriers faced by Latine children with limited English proficiency in obtaining timely autism diagnoses, including language discordance and cultural stigma. It highlights the need for structural adaptations in diagnostic care models to better serve Spanish-speaking families.

Background

Latine children often experience delays in autism diagnosis, leading to health inequities and poorer developmental outcomes. Barriers include language discordance, cultural stigma, and systemic issues within healthcare. Understanding these challenges is crucial for developing equitable diagnostic services.

Data Highlights

Qualitative and quantitative data were collected from caregivers, clinicians, and care coordinators to identify barriers and strategies for improving autism diagnostic services for Latine families, revealing significant delays in diagnosis and communication challenges.

Key Findings

  • Significant lag exists between caregivers' first developmental concerns and the autism diagnosis.
  • Language discordance and interpreter quality issues are major barriers in clinician-patient interactions.
  • Caregivers report social isolation and mistrust of health systems, exacerbated by immigration-related stressors.
  • Clinicians acknowledge challenges in communicating about autism with Spanish-speaking families.
  • Structural barriers include high service costs and limited transportation access.

Clinical Implications

Healthcare providers should recognize the unique challenges faced by Latine families in accessing autism diagnostic services.

Conclusion

Addressing the barriers to autism diagnosis for Latine children requires a comprehensive approach that includes cultural competence and systemic changes.

Related Resources & Content

  1. Conexiant, Source, 2023 -- Autism Diagnosis Is Expanding — At a Cost
  2. JAMA Network Open, Source, 2023 -- Innovation to Improve Detection of Early Developmental and Behavioral Concerns
  3. Frontiers in Psychiatry, Source, 2026 -- Getting the timing right. Autistic adolescents reflect on the value of an early diagnosis
  4. Frontiers in Psychiatry — Comparative analysis of diagnostic expectations between adults referred for ADHD and autism assessment: a thematic analysis
  5. CDC's Community Report on Autism
  6. CLAS Standards - Think Cultural Health
  7. Surveillance/Monitoring and Screening
  8. Recommendation: Autism Spectrum Disorder in Young Children: Screening | United States Preventive Services Taskforce
  9. Prevalence and Early Identification of Autism Spectrum Disorder Among Children Aged 4 and 8 Years — Autism and Developmental Disabilities Monitoring Network, 16 Sites, United States, 2022 | MMWR
  10. Frontiers | Autism Service Barriers for Latine Children and their Families: A Participatory Approach to Adapting Autism Diagnostic Care
  11. Unequal voices: examining autism identification and diagnosis disparities for indigenous Mixtec families - PMC
  12. Effect of Family Navigation on Diagnostic Ascertainment Among Children at Risk for Autism: A Randomized Clinical Trial From DBPNet - PMC
  13. Telehealth assessment of autism in preschoolers using the TELE-ASD-PEDS: A pilot clinical investigation - PubMed

Original Source(s)

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