Formal and Informal Social Care in People With Rheumatic and Musculoskeletal Diseases: A Cross-Sectional Multicenter Survey - Report - MDSpire
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Social Support Systems for Individuals with Rheumatic and Musculoskeletal Disorders: Findings from a Multicenter Cross-Sectional Study

  • By

  • Mehreen Somro

  • Karen Durrant

  • William G. Dixon

  • John McBeth

  • Alex MacGregor

  • Max Yates

  • Jenny H. Humphreys

  • May 10, 2026

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Social Support Systems for Individuals with Rheumatic and Musculoskeletal Disorders

Overview

This study investigates the social support systems for individuals with rheumatic and musculoskeletal disorders (RMDs), revealing that a significant portion of patients rely on informal care from family and friends.

Background

Rheumatic and musculoskeletal diseases (RMDs) are a leading cause of disability globally, significantly impacting patients' quality of life. Despite advancements in treatment, many patients experience a disability gap, necessitating support for daily living activities.

Data Highlights

This study found that three in five patients received regular care, primarily from unpaid sources, and one in three required assistance with basic daily activities.

Key Findings

  • Three in five patients with RMDs received regular care, mostly unpaid from family or friends.
  • One in three individuals with RMDs required help with basic activities of daily living.
  • For 70% of those receiving social care, assistance was provided on at least a daily basis.
  • The study's findings were consistent across both rural and urban populations in the UK.
  • Informal caregiving contributes significantly to the economic burden of RMDs.

Clinical Implications

Healthcare providers should recognize the importance of both formal and informal caregiving in managing RMDs. Addressing the needs of caregivers may improve patient outcomes and reduce the overall burden of these diseases.

Conclusion

The study highlights the role of social support systems in the care of individuals with RMDs.

Related Resources & Content

  1. Frontiers in Medicine, 2026 -- Systemic inflammation and extra-articular manifestations in rheumatoid arthritis: a cross-sectional study
  2. Clinical Rheumatology, 2020 -- Frequency of Sjögren’s Syndrome in Patients with Rheumatoid Arthritis in the United States: Insights from the Corrona Registry Observational Study
  3. Clinical Rheumatology, 2018 -- Physical Activity Patterns and C-Reactive Protein Levels as Indicators of Spinal Immobility Progression in Ankylosing Spondylitis Patients
  4. Clinical Rheumatology, 2021 -- Examining the Diagnosis, Treatment, and Impact of Ankylosing Spondylitis in Patients from Central Eastern Europe and the United States: A Real-World Analysis
  5. EULAR, 2026 -- Recommendations Management
  6. Scientific Reports, 2025 -- The impact of peer support groups on the psychological well-being of patients with rheumatoid arthritis: a randomized controlled trial
  7. Recommendations Management | EULAR
  8. The impact of peer support groups on the psychological well-being of patients with rheumatoid arthritis: a randomized controlled trial | Scientific Reports

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