Experiences with shared decision-making in psychotropic medication for people with intellectual disabilities: perspectives of experts by experience, relatives, and support professionals - Report - MDSpire

Experiences with shared decision-making in psychotropic medication for people with intellectual disabilities: perspectives of experts by experience, relatives, and support professionals

  • By

  • Josien Jonker

  • Gerda de Kuijper

  • Evelien Ridder

  • Nynke Scherpbier - de Haan

  • July 3, 2026

  • 0 min

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Perspectives on Shared Decision-Making in Psychotropic Medication for ID

Overview

This study explores the experiences of individuals with intellectual disabilities (ID), their families, and support professionals regarding shared decision-making (SDM) in psychotropic medication, identifying barriers and themes that impact SDM effectiveness.

Background

Shared decision-making (SDM) is crucial for person-centred care, particularly for individuals with intellectual disabilities (ID) who face challenges in understanding medical information and communicating their needs. The prescription of psychotropic medications in this population raises concerns about overmedication and quality of life. Understanding the dynamics of SDM can enhance the involvement of patients and their families in treatment decisions.

Data Highlights

No numerical data provided in the source material.

Key Findings

  • Seven themes were identified regarding SDM experiences: communication with clinicians, tailored information provision, patient influence in decision-making, medication choices, involvement of relatives, accessibility of care, and impact on daily life.
  • Barriers to effective SDM include communication challenges and insufficient professional support.
  • Meaningful involvement in SDM requires accessible information and collaboration among patients, relatives, and professionals.
  • Relational dynamics and communication quality significantly shape the SDM process in psychotropic medication prescribing.
  • Current practices often do not routinely involve individuals with ID in medication-related decisions.

Clinical Implications

Healthcare professionals should enhance communication and provide tailored information to individuals with ID and their families to facilitate shared decision-making.

Conclusion

The study highlights the need for improved shared decision-making practices in psychotropic medication for individuals with ID.

Related Resources & Content

  1. BMC Psychiatry, 2025 -- Feasibility of Collaborative Medication Management in Consultations at Social Psychiatric Residences: A Qualitative Interview Analysis
  2. Frontiers in Psychiatry, 2026 -- Psychodynamic accessibility: a testable framework for supported agency in social psychiatry and psychiatric rehabilitation
  3. Frontiers in Psychiatry, 2026 -- The Role of Mental Health Professionals in Psychiatric Advance Directives: Addressing Epistemic Injustice and Ethical Considerations
  4. The ASCO Post, 2013 -- SIDEBAR: Shared Decisions: What Should We Expect?
  5. NICE, 2025 -- Learning disability: Guidance on learning disabilities and challenging behaviour
  6. PubMed, 2008 -- Risperidone, haloperidol, and placebo in the treatment of aggressive challenging behaviour in patients with intellectual disability: a randomised controlled trial
  7. AHRQ -- Shared Decision Making | Agency for Healthcare Research and Quality
  8. Learning disability:
  9. Risperidone, haloperidol, and placebo in the treatment of aggressive challenging behaviour in patients with intellectual disability: a randomised controlled trial - PubMed
  10. Shared Decision Making | Agency for Healthcare Research and Quality

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