Development and Validation of a Sexual Quality of Life Score for Youths With Inflammatory Bowel Disease - Report - MDSpire

Development and Validation of a Sexual Quality of Life Score for Youths With Inflammatory Bowel Disease

  • By

  • Alexandre Mancheron

  • Agnès Dumas

  • Isabelle Nion Larmurier

  • Cecilia Landman

  • Laurent Peyrin Biroulet

  • Bénédicte Caron

  • Clotilde Baudry

  • Matthieu Allez

  • Mélanie Serrero

  • Dalal Yahioune

  • Stéphane Nancey

  • Céline Roman

  • Rémi Ducleau-Loras

  • Stéphanie Coopman

  • Priscilla Boizeau

  • Mathilde Husson

  • Shaya Sable

  • Iona Tarbet

  • Corinne Devos

  • Aurelie Bourmaud

  • Christine Martinez-Vinson

  • December 27, 2024

  • 0 min

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Creation and Validation of BLOOMI Sexual QoL Index for Youth with IBD

Overview

The BLOOMI score, a newly developed 10-item sexual quality of life (QoL) index, was validated in 104 young patients aged 15-25 years with inflammatory bowel disease (IBD). It demonstrated strong correlation with established gold standard scores (IIEF and SFQ28) and identified key factors such as fatigue and body image concerns that negatively impact sexual QoL in this population.

Background

Inflammatory Bowel Disease (IBD) can adversely affect sexual function and quality of life, yet research focusing on adolescents and young adults remains limited. Existing sexual dysfunction scores are validated primarily in older populations and may not be suitable for youths aged 15-25 years. Addressing sexuality in clinical consultations is challenging due to patient embarrassment and clinician discomfort, highlighting the need for a tailored, easy-to-use sexual QoL assessment tool for young IBD patients.

Data Highlights

ParameterValue
Number of participants104
Median age23.2 years
Prevalence of erectile dysfunction (IIEF responders)19.1%
SFQ domains (Desire, Arousal sensation and cognition, Orgasm)Median scores below threshold for absence of sexual dysfunction

Key Findings

  • BLOOMI is a 10-item sexual QoL score designed specifically for youths with IBD, formatted as a disk for ease of use in clinical settings.
  • The score showed strong internal consistency and correlated well with gold standard measures (IIEF and SFQ28).
  • Approximately 19.1% of male participants reported erectile dysfunction based on IIEF responses.
  • Median scores in SFQ domains related to desire, arousal, and orgasm were below thresholds indicating sexual dysfunction in this population.
  • Fatigue, abdominal pain, body image concerns, and fear of anal leakage were significantly associated with poorer sexual QoL.
  • The tool facilitates discussion of sexual health between clinicians and young patients, addressing a commonly neglected area in IBD care.

Clinical Implications

The BLOOMI score provides clinicians with a validated, youth-appropriate instrument to screen for sexual quality of life issues in young patients with IBD. Its simple disk format encourages open dialogue about sexual health, enabling early identification of dysfunction and related psychosocial factors. Incorporating BLOOMI into routine care may improve holistic management and quality of life outcomes for this vulnerable population.

Conclusion

BLOOMI is a validated, user-friendly sexual QoL assessment tool tailored for adolescents and young adults with IBD. It addresses an important gap in clinical practice by facilitating the recognition and discussion of sexual challenges in this age group.

References

  1. Original Article 2024 -- Creation and Assessment of a Sexual Quality of Life Index for Young Individuals with Inflammatory Bowel Disease

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