PICU diaries and parental PTSD symptoms—a pilot randomized controlled trial assessing feasibility and psychological outcomes - Report - MDSpire

Evaluation of PICU Diaries and Their Impact on Parental PTSD Symptoms: A Pilot Randomized Controlled Trial on Feasibility and Psychological Effects

  • By

  • Franziska Perdereau

  • Felix Neunhoeffer

  • Maria Schweizer

  • Katharina Maier

  • Ute Wagner

  • Johannes Nordmeyer

  • Juliane Engel

  • July 21, 2026

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Clinical Report: Evaluation of PICU Diaries and Their Impact on Parental PTSD Symptoms

Overview

This pilot randomized controlled trial evaluates the feasibility of implementing PICU diaries and their psychological effects on parents of critically ill children. Preliminary findings indicate a 12.7% prevalence of suspected PTSD among parents six months post-discharge, with higher rates observed in mothers compared to fathers.

Background

Parents of children in pediatric intensive care units (PICUs) face significant psychological distress, with PTSD affecting a substantial proportion. This study contributes to the limited quantitative evidence on the effectiveness of such interventions in pediatric settings.

Data Highlights

OutcomeIntervention Group (IG)Control Group (CG)
Suspected PTSD Prevalence14.5% (10/69)11.1% (9/81)
Dropout Rate to T14.7%N/A
Retention Rate to T295.5%N/A
PTSD in Mothers18.5%N/A
PTSD in Fathers5.8%N/A

Key Findings

  • 104 out of 149 eligible families consented to participate, achieving a 69.8% recruitment rate.
  • The dropout rate until PICU discharge was 4.7%, indicating high retention during the intervention.
  • 12.7% of parents screened positive for suspected PTSD six months post-discharge.
  • PTSD prevalence was higher in mothers (18.5%) compared to fathers (5.8%).
  • Parents with suspected PTSD exhibited lower resilience scores.

Clinical Implications

The study demonstrates the feasibility of integrating PICU diaries into routine care, with high recruitment and retention rates.

Conclusion

This pilot study provides insights into the implementation of PICU diaries and preliminary findings regarding parental PTSD symptoms.

Related Resources & Content

  1. Frontiers, 2026 -- PICU diaries and parental PTSD symptoms—a pilot randomized controlled trial assessing feasibility and psychological outcomes
  2. HAS, 2025 -- Diagnosis and management of Children with Post-Intensive Care Syndrome in Paediatrics (PICS-p)
  3. SCCM, 2024 -- Guidelines on Family-Centered Care for Adult ICUs
  4. Intensive Care Medicine — Outcomes in Pediatric Intensive Care: Physical Health Assessment at Three Months Post-Discharge
  5. Intensive Care Medicine — Impact of the Caregiver Pathway Intervention on Long-Term Symptoms of Post-Intensive Care Syndrome in Family Caregivers of Critically Ill Patients: Findings from a Randomized Controlled Trial
  6. Intensive Care Medicine — An In-Depth Investigation of Parental Experiences in Seven Pediatric Intensive Care Units in the Netherlands
  7. Intensive Care Medicine — Parental Perspectives on Care Satisfaction in Pediatric Intensive Care: Insights from the EMPATHIC Study
  8. Diagnosis and management of Children with Post-Intensive Care Syndrome in Paediatrics (PICS-p)
  9. Guidelines on Family-Centered Care for Adult ICUs: 2024 | SCCM
  10. Effect of diary intervention on sleep quality and risk of stress disorders among critically ill children in pediatric intensive care units and on their parents’ anxiety level: A randomized controlled trial - ScienceDirect
  11. Frontiers | PICU diaries and parental PTSD symptoms—a pilot randomized controlled trial assessing feasibility and psychological outcomes
  12. The Effect of Intensive Care Unit Diaries on Posttraumatic Stress Disorder, Anxiety, and Depression: A Systematic Review and Meta-analysis of Randomized Controlled Trials - PubMed
  13. The Effect of ICU Diaries on Psychological Outcomes and Quality of Life of Patients and Relatives: Overview of Systematic Reviews - Zuo - 2025 - Journal of Clinical Nursing - Wiley Online Library
  14. Effectiveness of family-provider communication interventions on family’s psychological health, communication quality, and health care utilization in the ICU: A systematic review and meta-analysis of randomized controlled trials - ScienceDirect

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