Sense of coherence in family caregivers of children with chronic diseases: a narrative review - Report - MDSpire

Sense of coherence in family caregivers of children with chronic diseases: a narrative review

  • By

  • Fangyu Shi

  • Junjie Zhao

  • Xin Zhang

  • May 7, 2026

  • 0 min

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Clinical Report: Understanding Sense of Coherence Among Family Caregivers

Overview

This narrative review explores the psychological burden faced by family caregivers of children with chronic illnesses and highlights the importance of Antonovsky's Sense of Coherence (SOC) as a resource for coping. It identifies gaps in current research and suggests directions for future studies to enhance caregiver mental health and care systems.

Background

The increasing prevalence of chronic diseases in children poses significant challenges for family caregivers, who often experience psychological distress due to their caregiving roles. Understanding the factors that influence caregivers' mental health, particularly through the lens of SOC, is crucial for developing effective interventions. This topic is vital as it impacts not only the caregivers' well-being but also the overall care provided to children with chronic conditions.

Data Highlights

No specific numerical data or trial data presented in the article.

Key Findings

  • The prevalence of chronic diseases in children has increased from 1.8% in 1960 to 8% in 2010, with ongoing upward projections.
  • High levels of Sense of Coherence (SOC) can help caregivers manage care burdens and improve their quality of life.
  • Current research on SOC among family caregivers is limited in methodological diversity and depth.
  • Caregivers are vulnerable to psychological outcomes such as anxiety, depression, and burnout due to their caregiving responsibilities.
  • Future research should address the unique needs of underrepresented caregiver populations and explore dynamic aspects of SOC over time.

Clinical Implications

Clinicians should consider integrating SOC-focused interventions into care plans for family caregivers to enhance their coping mechanisms and mental health. Addressing the psychological needs of caregivers is essential for optimizing the overall care system for children with chronic illnesses.

Conclusion

The review underscores the importance of understanding SOC in family caregivers and highlights the need for targeted research and interventions to support this vulnerable group. Enhancing caregiver mental health can lead to improved outcomes for both caregivers and the children they care for.

Related Resources & Content

  1. Frontiers, Source, 2026 -- Sense of coherence in family caregivers of children with chronic diseases: A Narrative Review
  2. The ASCO Post, Source, 2025 -- Incorporating Family Caregivers Into Shared Decision-Making for Patients With Cancer
  3. BMC Psychiatry, Source, 2025 -- Caregiver psychiatric symptoms, assessment delay, and access to supports for children with neurodevelopmental conditions
  4. The ASCO Post, Source, 2016 -- Why Care About the Caregivers?
  5. 2024 Recommendations for Preventive Pediatric Health Care: Policy Statement | Pediatrics | American Academy of Pediatrics
  6. Problem-Solving Skills Training for Parents of Children With Chronic Health Conditions: A Systematic Review and Meta-Analysis | Pediatrics | JAMA Pediatrics | JAMA Network
  7. Intensive Care Medicine — Exploring Outcome Measures for Family Members of Critically Ill Patients: A Scoping Review
  8. 2024 Recommendations for Preventive Pediatric Health Care: Policy Statement | Pediatrics | American Academy of Pediatrics
  9. Problem-Solving Skills Training for Parents of Children With Chronic Health Conditions: A Systematic Review and Meta-Analysis | Pediatrics | JAMA Pediatrics | JAMA Network
  10. Frontiers | Sense of coherence in family caregivers of children with chronic diseases: A Narrative Review

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