Hope is everything – an hermeneutic phenomenological study on the lived experiences of individuals with adrenocortical carcinoma - Report - MDSpire

Hope is everything – an hermeneutic phenomenological study on the lived experiences of individuals with adrenocortical carcinoma

  • By

  • Phillip Yeoh

  • Jackie Sturt

  • Wladyslawa Czuber-Dochan

  • July 8, 2026

  • 0 min

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Clinical Report: Exploring the Significance of Hope in Adrenocortical Carcinoma

Overview

This qualitative study investigates the experiences of patients with adrenocortical carcinoma (ACC), highlighting the psychological burdens. Findings reveal that living with ACC involves navigating significant existential challenges and treatment demands.

Background

Adrenocortical carcinoma (ACC) is a rare and aggressive cancer with high recurrence rates and poor survival outcomes. The psychological impact of ACC on patients is profound, often leading to significant emotional distress. Understanding patients' experiences is essential for improving their quality of life.

Data Highlights

No numerical data or trial data presented in the article.

Key Findings

  • Twenty-one participants shared their experiences of living with ACC, revealing a strong psychological burden.
  • Participants described their journey with ACC as an existential challenge, often feeling overwhelmed by treatment demands.
  • Many participants expressed a need for hope and compassionate care to cope with their condition.
  • Some participants reported thoughts of suicide due to the overwhelming nature of their experiences.
  • The study identified five themes and eleven subthemes related to the lived experiences of ACC patients.

Clinical Implications

Healthcare providers should recognize the psychological challenges faced by patients with ACC and consider integrating supportive care and mental health resources into treatment plans.

Conclusion

The study highlights the complexity of living with ACC. Future research should focus on developing interventions that address the psychological and practical impacts of the disease.

Related Resources & Content

  1. Author(s)/Org, Source, Year -- Title
  2. BMC Psychiatry (Springer) -- Promising Developments in Mental Health and Psychiatric Nursing: A Scoping Review
  3. Frontiers in Oncology -- Latent transition analysis of resilience in breast cancer patients and its association with sense of meaning in life: a longitudinal follow - up study
  4. Adrenocortical Carcinoma - StatPearls - NCBI Bookshelf
  5. ESE/ENSAT ACC Guidelines
  6. Journal of Neuro-Oncology — Prognostic Conversations on Staging Glioblastoma
  7. Adrenocortical Carcinoma - StatPearls - NCBI Bookshelf
  8. https://www.ese-hormones.org/media/3kxl5321/ese-ensat-acc-guidelines-13-5-2018.pdf
  9. Combination Chemotherapy in Advanced Adrenocortical Carcinoma | New England Journal of Medicine

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