Structural Ableism and Healthcare Transition for Adults with Intellectual and/or Developmental Disabilities - Report - MDSpire

Structural Ableism and Healthcare Transition for Adults with Intellectual and/or Developmental Disabilities

  • By

  • Kristen Ann Ehrenberger

  • Diana Mendoza-Cervantes

  • Jennifer L. Baldwin

  • May 18, 2026

  • 0 min

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Clinical Report: Examining Structural Barriers in Healthcare Transition for Adults with Intellectual and Developmental Disabilities

Overview

This report highlights the significant challenges faced by adults with intellectual and developmental disabilities (I/DD) during the transition from pediatric to adult healthcare systems. It emphasizes the need for systemic changes to address structural barriers and improve healthcare access for this population.

Background

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Data Highlights

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Key Findings

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Clinical Implications

Healthcare providers must recognize the unique challenges faced by adults with I/DD during their transition to adult care. Implementing structured transition programs and advocating for policy changes can help mitigate these barriers and improve access to necessary healthcare services.

Conclusion

Addressing the structural barriers in healthcare transition for individuals with I/DD is crucial for ensuring equitable access to care. Systemic changes are needed to support these individuals in achieving better health outcomes as they transition into adulthood.

Related Resources & Content

  1. Giblon et al, ASCO Post, 2025 -- Eliminating Barriers to Care for Patients With Intellectual and/or Developmental Disabilities
  2. Frontiers in Immunology, 2026 -- Inborn errors of immunity: a structured model for paediatric-to-adult transition of care
  3. Clinical Rheumatology, 2015 -- Current Landscape and Obstacles in Transitional Care for Young Individuals with Juvenile Idiopathic Arthritis within Clinical Networks
  4. Got Transition, 2023 -- Six Core Elements of Health Care Transition
  5. BMC Psychiatry (Springer) — Barriers and facilitators of accessing primary healthcare for patients with severe mental illness: a mixed-methods systematic review using framework synthesis
  6. Adolescent to adult health care transition for persons with intellectual and developmental disability: current barriers, next steps
  7. Got Transition® - Six Core Elements of Health Care Transition™
  8. Health Checks for People with Down Syndrome: A Pooled Analysis of Three Randomized Controlled Trials | MDPI

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