Design and Data Gathering Techniques in the Rheumatology Registry
By
Mehrdad Mahalleh
Mahdi Mahmoudi
Mohammad Tanhaei
Ahmadreza Jamshidi
February 25, 2026
Clinical Scorecard: Design and Data Gathering Techniques in the Rheumatology Registry
At a Glance
Category Detail
Condition Rheumatic Diseases Key Mechanisms Systematic collection of longitudinal data on patients with rheumatic diseases to support clinical care and research. Target Population Patients with confirmed rheumatic diseases in Iran. Care Setting Multi-center hospitals and clinics across Iran.
Key Highlights
Rheumatry is Iran's first national rheumatology registry, launched in 2016. Over 11,900 patients and 26,100 visits recorded to date. Registry aims to improve real-world evidence on disease patterns and treatment outcomes. Guideline-Based Recommendations
Diagnosis
Utilize standardized intake forms for baseline evaluations. Management
Implement structured follow-up forms for ongoing patient assessments. Monitoring & Follow-up
Track disease activity, treatment histories, and patient-reported outcomes. Risks
Ensure data protection and patient confidentiality through de-identification and secure data handling. Patient & Prescribing Data
Patients with rheumatoid arthritis, systemic lupus erythematosus, systemic sclerosis, and ankylosing spondylitis.
Registry data supports comparative effectiveness research and safety surveillance of therapies.
Clinical Best Practices
Align registry tools with internationally established standards. Facilitate collaboration among patients, clinicians, and researchers. References
