Discharge preparation experiences of intergenerational caregivers for premature infants in China’s NICU: a qualitative study - Scorecard - MDSpire
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Experiences of Intergenerational Caregivers Preparing for Preterm Infants’ Discharge from NICUs in China: A Qualitative Study

  • By

  • Sijia Shen

  • Ling Jiang

  • Yuelan Ma

  • Jinyu Zhu

  • Yan Zhang

  • October 15, 2026

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Clinical Scorecard: Experiences of Intergenerational Caregivers Preparing for Preterm Infants’ Discharge from NICUs in China: A Qualitative Study

At a Glance

CategoryDetail
ConditionClinical topic addressed by the source article: Experiences of Intergenerational Caregivers Preparing for Preterm Infants’ Discharge from NICUs in China
Key MechanismsReported discharge-preparation experiences included emotional distress and marginalisation, uncertainty about preterm-specific care, difficulty evaluating online information and refined care practices, generational differences, and a desire for continued professional support.
Target PopulationPatients or participants described in the source article.
Care SettingCare setting described in the source article.

Key Highlights

  • Grandparents described emotional deprivation and marginalisation from family involvement alongside happiness about bringing the infant home and concern about long-term health.
  • Caregivers reported that previous caregiving experience did not fully prepare them for preterm-specific care.
  • Participants described feeling overwhelmed by online care information and having difficulty judging refined care practices for preterm infants.
  • Grandparents wanted greater family support, community resources, and continued professional connections after discharge.
  • The authors recommend including intergenerational caregivers in discharge education and providing psychological support, caregiving skills education, and comprehensive home-care guidance.

Guideline-Based Recommendations

Diagnosis

    Management

    • The authors recommend including intergenerational caregivers in discharge-preparation education.
    • The authors recommend psychological support, education in caregiving knowledge and skills, and more comprehensive home-care guidance.

    Monitoring & Follow-up

      Risks

        Patient & Prescribing Data

        The study interviewed 15 grandparent caregivers of preterm infants hospitalized in a NICU at a tertiary-level hospital in Jiangsu Province, China, from March to May 2025.

        This qualitative study did not evaluate a treatment or medication. Participants described a need for family support, professional education, home-care guidance, and ongoing professional contact.

        Clinical Best Practices

        • The authors recommend including intergenerational caregivers in discharge-preparation education.
        • The authors recommend psychological support, education in caregiving knowledge and skills, and comprehensive home-care guidance.
        • Study participants reported difficulty assessing online information and refined care practices, and a desire for family support, community resources, and continued professional connections after discharge.

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