The 2026 IBD UK Standards of healthcare service design and delivery for adults and children living with Crohn’s disease and ulcerative colitis - Scorecard - MDSpire
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Standards for Healthcare Service Design and Delivery in the UK for Adults and Children with Crohn’s Disease and Ulcerative Colitis: 2026 Update

  • By

  • Christopher A Lamb

  • Catherine Picton

  • Ian Arnott

  • Pearl Avery

  • Debra Attwood

  • Saswata Banerjee

  • Sarah Bayliss

  • Graham Bell

  • Gauraang Bhatnagar

  • Caroline Brocklehurst

  • Vicky Buckley

  • Valerio Celentano

  • Rachel Dodd

  • Amy Gittins

  • Katie Keetarut

  • Gayle Martin

  • Rafeeq Muhammed

  • Marianne Radcliffe

  • Fiona Rees

  • Ruth Rudling

  • Clare Tibbatts

  • Jessica Turner

  • Catherine Winsor

  • Nathaniel Woo

  • Lisa Younge

  • Christian P Selinger

  • IBD UK Board

  • A Barney Hawthorne

  • April 7, 2026

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Clinical Scorecard: Standards for Healthcare Service Design and Delivery in the UK for Adults and Children with Crohn’s Disease and Ulcerative Colitis: 2026 Update

At a Glance

CategoryDetail
ConditionInflammatory Bowel Disease (IBD)
Key MechanismsMultidisciplinary, coordinated care with defined leadership; patient-centred care; holistic assessment.
Target PopulationAdults and children with Crohn’s disease and ulcerative colitis.
Care SettingHealthcare service design and delivery in the UK.

Key Highlights

  • 60 statements across 7 domains: 6 unchanged, 48 updated, 7 deleted, and 6 new.
  • Emphasis on timely referral, access to diagnostics, treatments, and surgery.
  • Focus on patient-centred care, including shared decision-making and personalised care plans.
  • Inclusion of holistic assessment of physical, nutritional, and psychological needs.
  • Support for quality improvement and research participation.

Guideline-Based Recommendations

Diagnosis

  • Timely referral from primary care.
  • Access to diagnostic tests.

Management

  • Personalised care plans and shared decision-making.
  • Holistic management of patient needs.

Monitoring & Follow-up

  • Quality improvement supported by electronic systems.
  • Regular audits to assess service delivery.

Risks

  • Disparities in care quality remain a concern.
  • Need for continuous service improvement.

Patient & Prescribing Data

Individuals with Crohn’s disease and ulcerative colitis.

Long-term management required; multidisciplinary approach recommended.

Clinical Best Practices

  • Implement structured transition pathways for patients.
  • Encourage patient involvement in service development.
  • Utilize national benchmarking for quality assessment.

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