Exploring caregiver experiences with the altitudes digital mental health program: A thematic analysis
By
Kelsey Ludwig
Elizabeth Fraser
David Penn
Bryan Stiles
Hanna Campbell
Heidi Dittus
Rathisree Seenivasan
Jeongwoo Lee
Mario Alvarez-Jimenez
John Gleeson
June 6, 2026
Clinical Scorecard: Investigating Caregiver Perspectives on the Altitudes Digital Mental Health Initiative: A Thematic Review
At a Glance
Category Detail
Condition Schizophrenia spectrum disorders Key Mechanisms Digital mental health interventions (DMHIs) providing scalable, accessible support for caregivers Target Population Caregivers of young adults with first-episode psychosis (FEP) Care Setting Coordinated Specialty Care (CSC) programs
Key Highlights
Lifetime prevalence of psychotic disorders is approximately 3% of the population. Economic cost of schizophrenia in the U.S. is estimated at $367 billion annually. Caregivers report both positive experiences and significant burdens related to caregiving. Digital platforms can enhance coping skills and reduce distress among family members. The Altitudes platform offers psychoeducational resources and peer support for caregivers. Guideline-Based Recommendations
Diagnosis
Engagement in Coordinated Specialty Care (CSC) for early psychosis. Management
Utilization of caregiver-focused interventions within CSC models. Monitoring & Follow-up
Regular check-in calls by clinical moderators to support caregiver engagement. Risks
Caregiving can lead to elevated stress and reduced quality of life. Patient & Prescribing Data
Adults (≥18 years) who are unpaid caregivers of young people with early psychosis.
Caregivers engaged in an open trial of the Altitudes platform.
Clinical Best Practices
Incorporate caregiver needs into treatment plans. Provide digital mental health resources to enhance caregiver support. Facilitate peer support and community engagement for caregivers. Related Resources & Content
