“I ask them what autism means for them”: a qualitative study of staff experiences of working with autistic women and birthing people in community perinatal mental health teams
By
V. Westgate
C. Thompson
D. Caramaschi
H. O’Mahen
October 27, 2025
Clinical Scorecard: Supporting Autistic Women and Birthing Individuals in Community Perinatal Mental Health Services
At a Glance
Category Detail
Condition Perinatal mental health issues in autistic women and birthing people (AWBP)
Key Mechanisms Challenges include sensory demands, executive functioning differences, communication barriers, and healthcare inequalities impacting mental health
Target Population Autistic women and birthing individuals during pregnancy through two years postpartum
Care Setting Community Perinatal Mental Health Teams (CPMHTs) within the UK National Health Service
Key Highlights
AWBP are at increased risk of perinatal mental health problems including anxiety and depression. Healthcare staff often lack autism-specific training, limiting effective support for AWBP. Systemic barriers include sensory challenges, communication difficulties, and gender biases affecting diagnosis and care.
Guideline-Based Recommendations
Diagnosis
Recognize gender-specific presentations and camouflaging of autism symptoms in women. Be aware that many AWBP may lack formal autism diagnosis or have been misdiagnosed.
Management
Provide autism-appropriate adaptations in perinatal mental health care. Tailor psychological therapies to meet the unique needs of autistic individuals. Enhance multidisciplinary team collaboration including psychiatrists, nurses, psychologists, social workers, and peer support.
Monitoring & Follow-up
Monitor mental health symptoms with attention to sensory and communication needs. Be vigilant for higher rates of antenatal and postnatal anxiety and depression in AWBP.
Risks
Increased risk of suicide and psychiatric diagnoses in autistic women. Barriers to accessing care may exacerbate mental health outcomes.
Patient & Prescribing Data
Autistic women and birthing people experiencing perinatal mental health difficulties
Limited evidence on effectiveness of current strategies; need for tailored approaches and clinician training to improve outcomes
Clinical Best Practices
Implement autism and learning disability training for all health and social care staff as mandated by UK Health and Care Act 2022. Adapt healthcare environments to accommodate sensory sensitivities and communication preferences. Increase awareness of the double empathy problem to improve clinician-patient communication. Address gender biases in healthcare to improve recognition and support for AWBP. Foster connections with specialist autism services to support referral and treatment planning.
References