Positioning equity at the core of European dementia research: a pan-European co-produced perspective from the PANEUCARE consortium - Scorecard - MDSpire
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Centering Equity in European Dementia Research: A Collaborative Perspective from the PANEUCARE Consortium

  • By

  • Maria Isabel Cardona

  • Clarissa Giebel

  • Anthony Scerri

  • Anthea Innes

  • Ninoslav Mimica

  • Osman Kučuk

  • T. Rune Nielsen

  • Jūratė Macijauskienė

  • Birute Bartkevičiūtė

  • Carolien Smits

  • Carmel Geoghegan

  • Soraya Moradi-Bachiller

  • Anne Marie Rokstad

  • Iva Holmerova

  • Elżbieta Trypka

  • Ágnes Egervári

  • Raluca Sfetcu

  • Marija Taneska

  • Péter Hegedűs

  • Iryna Shevchenko

  • Svetlana Iloski

  • Thanos Chatzikostopoulos

  • Jochen René Thyrian

  • August 31, 2026

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Clinical Scorecard: Centering Equity in European Dementia Research: A Collaborative Perspective from the PANEUCARE Consortium

At a Glance

CategoryDetail
ConditionDementia
Key MechanismsRegional variation in research participation, funding, and care practices.
Target PopulationPeople living with dementia and caregivers across Europe.
Care SettingDementia care research and policy across diverse European contexts.

Key Highlights

  • Marked regional variation in dementia care research and practices across Europe.
  • Underrepresentation of Southern and Eastern European countries in dementia research.
  • Common challenges include workforce shortages, delayed diagnosis, and caregiver burden.
  • Innovations such as community-based services and digital tools show potential for improvement.
  • The EQUITABLE framework provides actionable guidance for inclusive dementia research.

Guideline-Based Recommendations

Diagnosis

  • Timely access to diagnosis and specialist assessment is crucial.

Management

  • Culturally sensitive and post-diagnostic care should be prioritized.

Monitoring & Follow-up

  • Enhanced caregiver support is necessary for better outcomes.

Risks

  • Migrants face additional barriers in accessing dementia-related services.

Patient & Prescribing Data

Remove or revise to ensure direct sourcing.

Clinical Best Practices

  • clinical_best_practices

Related Resources & Content

Original Source(s)

Positioning equity at the core of European dementia research: a pan-European co-produced perspective from the PANEUCARE consortium

  • by Maria Isabel Cardona, Clarissa Giebel, Anthony Scerri, Anthea Innes, Ninoslav Mimica, Osman Kučuk, T. Rune Nielsen, Jūratė Macijauskienė, Birute Bartkevičiūtė, Carolien Smits, Carmel Geoghegan, Soraya Moradi-Bachiller, Anne Marie Rokstad, Iva Holmerova, Elżbieta Trypka, Ágnes Egervári, Raluca Sfetcu, Marija Taneska, Péter Hegedűs, Iryna Shevchenko, Svetlana Iloski, Thanos Chatzikostopoulos, Jochen René Thyrian

  • August 31, 2026

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