Formal and Informal Social Care in People With Rheumatic and Musculoskeletal Diseases: A Cross-Sectional Multicenter Survey - Scorecard - MDSpire
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Social Support Systems for Individuals with Rheumatic and Musculoskeletal Disorders: Findings from a Multicenter Cross-Sectional Study

  • By

  • Mehreen Somro

  • Karen Durrant

  • William G. Dixon

  • John McBeth

  • Alex MacGregor

  • Max Yates

  • Jenny H. Humphreys

  • May 10, 2026

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Clinical Scorecard: Social Support Systems for Individuals with Rheumatic and Musculoskeletal Disorders: Findings from a Multicenter Cross-Sectional Study

At a Glance

CategoryDetail
ConditionRheumatic and Musculoskeletal Diseases (RMDs)
Key MechanismsImpact on physical, social, and mental health, leading to disability and economic burden.
Target PopulationAdults with rheumatic and musculoskeletal disorders, including rheumatoid arthritis.
Care SettingMulticenter cross-sectional study across urban and rural settings in the United Kingdom.

Key Highlights

  • Three in five patients received regular care, mostly unpaid from family or friends.
  • One in three individuals with RMDs require help with basic activities of daily living.
  • Caregiving patterns were consistent across rural and urban populations.
  • Direct and indirect costs associated with RMDs include both formal and informal care.
  • Support from family and friends is often unrecognized and difficult to quantify.

Guideline-Based Recommendations

Diagnosis

  • Assessment of social care needs should be included in the management of RMDs.

Management

  • Consider both formal and informal caregiving in treatment plans.

Monitoring & Follow-up

  • Regular evaluation of patients' social support systems is recommended.

Risks

  • Neglecting informal care contributions may lead to underestimating the economic burden of RMDs.

Patient & Prescribing Data

Adults with rheumatic and musculoskeletal disorders attending outpatient clinics.

Patients often rely on informal care, which is crucial for daily functioning.

Clinical Best Practices

  • Incorporate social care assessments in routine clinical evaluations.
  • Acknowledge the role of informal caregivers in patient care plans.
  • Facilitate access to both formal and informal support resources.

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