Influence of hormonal status in hereditary hemorrhagic telangiectasia – analysis of an online patient questionnaire
By
Freya Droege
Kruthika Thangavelu
Angela Koeninger
Eva Maria Huessler
Stephan Lang
Boris A. Stuck
Urban W. Geisthoff
March 20, 2026
Clinical Scorecard: Impact of Hormonal Factors on Hereditary Hemorrhagic Telangiectasia: Insights from an Online Patient Survey
At a Glance
Category Detail
Condition Key Mechanisms Pathogenic variants in genes affecting the TGFβ pathway (source needed). Target Population Care Setting
Key Highlights
Remove 'but evidence is limited' from the hormonal therapy statement. Guideline-Based Recommendations
Diagnosis
Management
Preventive and acute treatment options include topical nasal medications, nasal packing, and surgical options (source needed). Monitoring & Follow-up
Risks
Patient & Prescribing Data
Hormonal factors may influence epistaxis severity (source needed).
Clinical Best Practices
Utilize the ESS to assess and monitor epistaxis severity (source needed). Related Resources & Content
