Experiences with shared decision-making in psychotropic medication for people with intellectual disabilities: perspectives of experts by experience, relatives, and support professionals - Scorecard - MDSpire

Experiences with shared decision-making in psychotropic medication for people with intellectual disabilities: perspectives of experts by experience, relatives, and support professionals

  • By

  • Josien Jonker

  • Gerda de Kuijper

  • Evelien Ridder

  • Nynke Scherpbier - de Haan

  • July 3, 2026

  • 0 min

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Clinical Scorecard: Perspectives on Shared Decision-Making in Psychotropic Medication for Individuals with Intellectual Disabilities: Insights from Experts by Experience, Family Members, and Support Professionals

At a Glance

CategoryDetail
ConditionIntellectual Disabilities
Key MechanismsShared decision-making (SDM) enhances patient involvement and satisfaction in medication choices.
Target PopulationIndividuals with intellectual disabilities (ID) and their support networks.
Care SettingMental healthcare and support services.

Key Highlights

  • Barriers to SDM include communication challenges and insufficient professional support.
  • Patients and carers desire more involvement in medication decisions.
  • Relational dynamics and communication quality significantly influence SDM.
  • Meaningful involvement requires tailored information and collaboration with relatives.
  • Psychotropic medications are often prescribed off-label, raising concerns about overmedication.

Guideline-Based Recommendations

Diagnosis

  • Assess the appropriateness of psychotropic medication prescriptions in individuals with ID.

Management

  • Implement shared decision-making practices to involve patients and carers in treatment choices.

Monitoring & Follow-up

  • Regularly evaluate the impact of prescribed medications on the quality of life of individuals with ID.

Risks

  • Be aware of the risks of overmedication and its effects on daily functioning.

Patient & Prescribing Data

Individuals with intellectual disabilities receiving psychotropic medications.

Psychotropic medications are often prescribed without formal psychiatric diagnoses, primarily to manage challenging behaviors.

Clinical Best Practices

  • Ensure accessible and understandable information is provided to patients and their families.
  • Foster collaboration between healthcare professionals, patients, and support networks.
  • Tailor decision-making processes to accommodate the unique needs of individuals with ID.

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