Opinion: On the reasons for underutilization of ECT in individuals with intellectual and developmental disability
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By
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Melanie Johnston
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Katie Brooker
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Catherine Franklin
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July 3, 2026
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Clinical Scorecard: Exploring the Factors Contributing to the Limited Use of ECT in Patients with Intellectual and Developmental Disabilities
At a Glance
| Category | Detail |
| Condition | Intellectual and Developmental Disabilities |
| Key Mechanisms | Electroconvulsive therapy (ECT) is effective for severe, treatment-refractory mood disorders, psychotic disorders, and catatonia. |
| Target Population | Individuals with intellectual and developmental disabilities, including autistic individuals. |
| Care Setting | Public and private hospital systems internationally. |
Key Highlights
- Individuals with intellectual and developmental disabilities experience inequities in accessing ECT.
- ECT is comparably safe and effective for this population as for general adult cohorts.
- Historical mistrust and stigma contribute to the underutilization of ECT.
- Modern ECT practices are ethically governed and significantly safer than historical methods.
- Therapeutic nihilism affects clinician confidence in treating individuals with disabilities.
Guideline-Based Recommendations
Diagnosis
- Assess and treat individuals with intellectual and developmental disabilities with consideration of their unique presentations.
Management
- Utilize ECT as a treatment option for severe psychiatric conditions when clinically indicated.
Monitoring & Follow-up
- Ensure physiological monitoring and adherence to stringent consent processes during ECT administration.
Risks
- Untreated psychiatric conditions can lead to significant morbidity and mortality.
Patient & Prescribing Data
Individuals with intellectual and developmental disabilities experiencing severe psychiatric illness.
Effective treatment can lead to substantial improvements in mood, behavior, and quality of life.
Clinical Best Practices
- Address historical narratives and stigma surrounding ECT in discussions with patients and families.
- Provide accessible and trustworthy information about ECT to counter misinformation.
- Encourage shared decision-making and supported decision-making frameworks.
Related Resources & Content