Opinion: On the reasons for underutilization of ECT in individuals with intellectual and developmental disability - Scorecard - MDSpire
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Exploring the Factors Contributing to the Limited Use of ECT in Patients with Intellectual and Developmental Disabilities

  • By

  • Melanie Johnston

  • Katie Brooker

  • Catherine Franklin

  • July 3, 2026

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Clinical Scorecard: Exploring the Factors Contributing to the Limited Use of ECT in Patients with Intellectual and Developmental Disabilities

At a Glance

CategoryDetail
ConditionIntellectual and Developmental Disabilities
Key MechanismsElectroconvulsive therapy (ECT) is effective for severe, treatment-refractory mood disorders, psychotic disorders, and catatonia.
Target PopulationIndividuals with intellectual and developmental disabilities, including autistic individuals.
Care SettingPublic and private hospital systems internationally.

Key Highlights

  • Individuals with intellectual and developmental disabilities experience inequities in accessing ECT.
  • ECT is comparably safe and effective for this population as for general adult cohorts.
  • Historical mistrust and stigma contribute to the underutilization of ECT.
  • Modern ECT practices are ethically governed and significantly safer than historical methods.
  • Therapeutic nihilism affects clinician confidence in treating individuals with disabilities.

Guideline-Based Recommendations

Diagnosis

  • Assess and treat individuals with intellectual and developmental disabilities with consideration of their unique presentations.

Management

  • Utilize ECT as a treatment option for severe psychiatric conditions when clinically indicated.

Monitoring & Follow-up

  • Ensure physiological monitoring and adherence to stringent consent processes during ECT administration.

Risks

  • Untreated psychiatric conditions can lead to significant morbidity and mortality.

Patient & Prescribing Data

Individuals with intellectual and developmental disabilities experiencing severe psychiatric illness.

Effective treatment can lead to substantial improvements in mood, behavior, and quality of life.

Clinical Best Practices

  • Address historical narratives and stigma surrounding ECT in discussions with patients and families.
  • Provide accessible and trustworthy information about ECT to counter misinformation.
  • Encourage shared decision-making and supported decision-making frameworks.

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