Balancing benefits and challenges of eHealth for family caregivers of people with Parkinson’s disease – A qualitative study - Scorecard - MDSpire

Balancing benefits and challenges of eHealth for family caregivers of people with Parkinson’s disease – A qualitative study

  • By

  • Hanna Johansson

  • Anette Alvariza

  • Breiffni Leavy

  • April 29, 2026

  • 0 min

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Clinical Scorecard: Evaluating the Advantages and Obstacles of eHealth for Family Caregivers of Individuals with Parkinson’s Disease – A Qualitative Analysis

At a Glance

CategoryDetail
ConditionParkinson’s Disease (PD)
Key MechanismsMotor and non-motor symptom management through eHealth solutions.
Target PopulationFamily caregivers of individuals with Parkinson’s Disease.
Care SettingFormal care contexts and home-based support.

Key Highlights

  • PD is the fastest-growing neurological disorder, projected to affect over 11.8 million people globally by 2030.
  • Family caregivers experience significant emotional and physical burdens as PD progresses.
  • eHealth solutions can enhance communication and support individualized care pathways.
  • Lower eHealth literacy is linked to older age, impacting access to digital health services.
  • The study emphasizes the need for family caregivers' perspectives in eHealth implementation.

Guideline-Based Recommendations

Diagnosis

  • Consider cognitive decline and neuropsychiatric symptoms in individuals with PD.

Management

  • Encourage physical activity and exercise as a complement to symptomatic therapy.

Monitoring & Follow-up

  • Utilize eHealth tools for monitoring motor and non-motor symptoms.

Risks

  • Be aware of the emotional distress and burden on family caregivers as PD progresses.

Patient & Prescribing Data

Individuals with Parkinson’s Disease supported by family caregivers.

Symptomatic therapies are currently the only available options for PD.

Clinical Best Practices

  • Incorporate family caregiver support in care plans for individuals with PD.
  • Facilitate training for caregivers to improve eHealth literacy and access.

References

Original Source(s)

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