Readmission and Late Mortality Among Children With Congenital Diaphragmatic Hernia
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By
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Marine Jouannin
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Pierre Pinson
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Mathis Collier
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Alexandre Lapillonne
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Jean-Marc Tréluyer
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Elsa Kermorvant-Duchemin
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June 29, 2026
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Clinical Scorecard: Hospital Readmissions and Long-Term Mortality in Pediatric Patients with Congenital Diaphragmatic Hernia
At a Glance
| Category | Detail |
|---|
| Condition | Congenital Diaphragmatic Hernia (CDH) |
| Key Mechanisms | Defect in the diaphragm allowing abdominal organs to herniate into the thoracic cavity, impairing lung development. |
| Target Population | Liveborn singleton children with CDH who underwent surgical repair within 6 months of life. |
| Care Setting | Pediatric critical care and neonatal surgery |
Key Highlights
- CDH occurs in approximately 1 in 3000 to 5000 births.
- Early mortality rates range from 10% to 40% depending on centers and countries.
- Long-term morbidity and readmission rates for CDH-associated complications are poorly documented.
- Study utilized linked national data to assess readmission and late mortality.
- Readmissions contribute to higher healthcare costs and prolonged hospital stays.
Guideline-Based Recommendations
Diagnosis
- Identification of CDH using ICD-10 code Q79.0.
Management
- Surgical repair of CDH within 6 months of life.
Monitoring & Follow-up
- Follow-up from primary discharge until death or study end date.
Risks
- Increased risk of readmission for respiratory, cardiovascular, nutritional, gastrointestinal, and surgical complications.
Patient & Prescribing Data
Children discharged alive after neonatal care and surgery for CDH.
Inhaled nitric oxide and ECMO may be used during primary care.
Clinical Best Practices
- Standardized management guidelines should be followed.
- Comprehensive follow-up care is essential to monitor long-term outcomes.
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