Integrating Patient-Reported Quality Measures in Systemic Lupus Erythematosus: Development of the American College of Rheumatology Implementation Guide - Scorecard - MDSpire
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Incorporating Patient-Reported Quality Metrics in Systemic Lupus Erythematosus: Creation of the Implementation Guide by the American College of Rheumatology

  • By

  • Catherine Nasrallah

  • Cherish Wilson

  • Christine Hariz

  • Christie M. Bartels

  • Shanthini Kasturi

  • Wambui Machua

  • Amy Bennett

  • Kate Chiseri

  • Allison Plitman

  • Starla Hairston Blanks

  • April Jorge

  • Patti Katz

  • Jinoos Yazdany

  • Shivani Garg

  • April 29, 2026

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Clinical Scorecard: Incorporating Patient-Reported Quality Metrics in Systemic Lupus Erythematosus: Creation of the Implementation Guide by the American College of Rheumatology

At a Glance

CategoryDetail
ConditionSystemic Lupus Erythematosus
Key MechanismsIncorporation of patient-reported outcome measures (PROMs) to enhance disease management and patient-centered care.
Target PopulationPatients diagnosed with systemic lupus erythematosus (SLE).
Care SettingRheumatology practices implementing ACR guidelines.

Key Highlights

  • First study to implement ACR-recommended PROMs in SLE clinical care.
  • Development of the SLE Quality Measures Implementation Guide.
  • Focus on barriers and facilitators to PROM collection in routine practice.
  • Use of qualitative interviews to assess implementation challenges.
  • Emphasis on the importance of tracking PROMs for improved patient outcomes.

Guideline-Based Recommendations

Diagnosis

  • Utilize standardized tools for assessing symptoms such as fatigue, pain, and emotional well-being.

Management

  • Incorporate ACR-developed PROMs into routine clinical practice.

Monitoring & Follow-up

  • Regularly track patient-reported outcomes to inform clinical decisions.

Risks

  • Increased rates of depression and anxiety in SLE patients compared to the general population.

Patient & Prescribing Data

Patients with systemic lupus erythematosus receiving care in rheumatology practices.

Implementation of PROMs can enhance understanding of patient experiences and improve care alignment with patient values.

Clinical Best Practices

  • Utilize the Consolidated Framework for Implementation Research (CFIR) to guide implementation efforts.
  • Engage multidisciplinary teams in the collection and analysis of PROMs.
  • Provide training and resources to practices for effective PROM integration.

Related Resources & Content

Original Source(s)

Integrating Patient-Reported Quality Measures in Systemic Lupus Erythematosus: Development of the American College of Rheumatology Implementation Guide

  • by Catherine Nasrallah, Cherish Wilson, Christine Hariz, Christie M. Bartels, Shanthini Kasturi, Wambui Machua, Amy Bennett, Kate Chiseri, Allison Plitman, Starla Hairston Blanks, April Jorge, Patti Katz, Jinoos Yazdany, Shivani Garg

  • April 29, 2026

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