A Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development - Scorecard - MDSpire

Exploring Patient Insights and Preferences in Lupus Care to Inform the Development of Treatment Guidelines

  • By

  • Shivani Garg

  • Izzy Hartel

  • Lisa R. Sammaritano

  • Anca Askanase

  • Bonnie L. Bermas

  • Maria Dall'Era

  • Alí Duarte-García

  • Victoria P. Werth

  • Brad Rovin

  • Reem A. Mustafa

  • Amy S. Turner

  • Bené Williams

  • Brian L. Ung

  • Hiya Bhavsar

  • Monique C. Gore-Massy

  • Nahirannette Pulido

  • Natacha Guerrero

  • Natalie M. Smith

  • Wambui Machua

  • Linda T. Hiraki

  • Mary Beth Son

  • July 1, 2026

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Clinical Scorecard: Exploring Patient Insights and Preferences in Lupus Care to Inform the Development of Treatment Guidelines

At a Glance

CategoryDetail
ConditionLupus Nephritis and Systemic Lupus Erythematosus
Key MechanismsPatient engagement in guideline development to align treatment recommendations with patient values and priorities.
Target PopulationPatients diagnosed with SLE or LN, including diverse cultural, social, and ethnic backgrounds.
Care SettingGuideline development through patient panel discussions.

Key Highlights

  • Emphasis on patient involvement in guideline development since 2015.
  • Identification of key themes: treatment and monitoring, clinical communication, and transparency.
  • Use of qualitative methods to capture patient experiences and perspectives.
  • Incorporation of patient feedback to enhance guideline recommendations.
  • Engagement strategies aimed at fostering collaborative care.

Guideline-Based Recommendations

Diagnosis

    Management

      Monitoring & Follow-up

        Risks

          Patient & Prescribing Data

          Patients with SLE or LN, regardless of disease control status.

          Focus on aligning treatment recommendations with patient preferences and values.

          Clinical Best Practices

          • Involve patients in the guideline development process.
          • Utilize qualitative research methods to gather patient insights.
          • Ensure diverse representation in patient panels to capture a wide range of experiences.

          Related Resources & Content

            Original Source(s)

            A Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development

            • by Shivani Garg, Izzy Hartel, Lisa R. Sammaritano, Anca Askanase, Bonnie L. Bermas, Maria Dall'Era, Alí Duarte-García, Victoria P. Werth, Brad Rovin, Reem A. Mustafa, Amy S. Turner, Bené Williams, Brian L. Ung, Hiya Bhavsar, Monique C. Gore-Massy, Nahirannette Pulido, Natacha Guerrero, Natalie M. Smith, Wambui Machua, Linda T. Hiraki, Mary Beth Son

            • July 1, 2026

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