A comparative analysis of health-related and individual quality of life in people with Parkinson’s disease
By
Ketevan Toloraia
Siegward Elsas
Arzu Tasci
Peter Fuhr
Ute Gschwandtner
May 5, 2026
Clinical Scorecard: A Comparative Study of Health-Related Quality of Life and Personal Quality of Life in Individuals with Parkinson’s Disease
At a Glance
Category Detail
Condition Parkinson's Disease
Key Mechanisms Interplay of physical, mental, and social aspects affecting quality of life.
Target Population Individuals with Parkinson's Disease (PwPD)
Care Setting Clinical and research settings focusing on chronic illness management.
Key Highlights
HRQoL and SEIQoL measure different aspects of quality of life. Anxiety is a significant predictor of HRQoL; self-rated apathy predicts SEIQoL. High daytime sleepiness and medication doses correlate with lower HRQoL. Family, relationships, autonomy, and health are key domains in SEIQoL. Person-centered care is essential for improving QoL in PwPD.
Guideline-Based Recommendations
Diagnosis
Utilize Parkinson’s Disease Questionnaire-39 (PDQ-39) for HRQoL assessment. Incorporate Schedule for the Evaluation of Individual Quality of Life (SEIQoL) for personalized assessment.
Management
Adopt a holistic approach to care that includes both HRQoL and IQoL measures.
Monitoring & Follow-up
Regularly assess psychological factors such as anxiety and apathy in PwPD.
Risks
Consider the impact of high medication doses and daytime sleepiness on patient quality of life.
Patient & Prescribing Data
Individuals diagnosed with Parkinson's Disease, particularly those experiencing psychological difficulties.
Focus on personalized care strategies that address both health-related and individual quality of life.
Clinical Best Practices
Integrate HRQoL and IQoL assessments in routine care. Prioritize person-centered care to enhance patient dignity and reduce stigma. Encourage patient involvement in care decisions to improve self-management.
References