Examining TikTok's Influence on Hidradenitis Suppurativa Education Among Individuals with Skin of Color: A Cross-Sectional Study
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By
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Arsema K Zadu
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Jordan Young
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Janyla A Seltzer
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Angel S Byrd
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Cheri Frey
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February 27, 2026
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Clinical Scorecard: Examining TikTok's Influence on Hidradenitis Suppurativa Education Among Individuals with Skin of Color: A Cross-Sectional Study
At a Glance
| Category | Detail |
|---|
| Condition | Hidradenitis Suppurativa |
| Key Mechanisms | Chronic inflammatory condition marked by sinus tracts, nodules, and abscesses in intertriginous areas. |
| Target Population | Individuals with skin of color, particularly African American women. |
| Care Setting | Dermatology, social media platforms (TikTok). |
Key Highlights
- 48% of TikTok videos analyzed were created by patients.
- 20% of videos were produced by board-certified dermatologists.
- 70% of videos focused on treatment content.
- Significant diagnostic delays for Black patients compared to White patients.
- Misinformation risk on social media can worsen disease severity.
Guideline-Based Recommendations
Diagnosis
- Early intervention is critical to prevent advanced-stage manifestations.
Management
- Dermatologists should engage with patients on TikTok to address treatment safety and efficacy.
Monitoring & Follow-up
- Assess the safety and efficacy of herbal and alternative remedies used by patients.
Risks
- Misinformation from non-medical creators can lead to ineffective treatments.
Patient & Prescribing Data
Individuals with hidradenitis suppurativa, particularly those with skin of color.
Commonly recommended products include PanOxyl, Hibiclens, and Humira.
Clinical Best Practices
- Encourage open discussions about non-medical-grade treatments.
- Provide evidence-based guidance to minimize risks of harmful treatments.
- Foster patient trust through active engagement on social media.
References
