Validation of a German translation of the CARE questionnaire and its implementation as electronic PROM to assess patient-reported postoperative convalescence and recovery after major urological surgery - Scorecard - MDSpire
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Validation of a German translation of the CARE questionnaire and its implementation as electronic PROM to assess patient-reported postoperative convalescence and recovery after major urological surgery
Clinical Scorecard: Assessment of a German Version of the CARE Questionnaire and Its Use as an Electronic Patient-Reported Outcome Measure for Evaluating Postoperative Recovery Following Major Urological Surgery
At a Glance
Category
Detail
Condition
Postoperative recovery following major urological cancer surgeries (radical prostatectomy, radical cystectomy, partial/radical nephrectomy)
Key Mechanisms
Use of a validated, multi-dimensional patient-reported outcome measure (CARE questionnaire) translated into German and implemented electronically to assess health status and convalescence
Target Population
Adult German-speaking patients undergoing major urological cancer surgery with internet access
Care Setting
University hospital outpatient and inpatient settings with electronic PROM system integration
Key Highlights
CARE questionnaire is a 27-item, multi-dimensional tool assessing pain, gastrointestinal symptoms, cognition, and activity to evaluate postoperative health status.
Electronic PROM (ePROM) system facilitates easy patient access and completion, improving routine postoperative recovery monitoring.
German translation of CARE was validated using confirmatory factor analysis showing good model fit (CFI > 0.90, RMSEA < 0.08).
Guideline-Based Recommendations
Diagnosis
Use CARE questionnaire preoperatively (baseline), at discharge, and 6 weeks post-surgery to assess patient-reported health status and recovery.
Management
Implement electronic PROM systems to routinely collect CARE data to monitor recovery and guide outpatient care.
Use CARE scores to identify patients with delayed recovery or complications to optimize supportive care and reduce readmissions.
Monitoring & Follow-up
Monitor CARE subscale scores (pain, gastrointestinal, cognition, activity) and total CARE score longitudinally to track recovery trajectory.
Correlate CARE outcomes with clinical factors such as age, comorbidities, BMI, sex, and in-hospital complications.
Risks
Exclude patients with cognitive impairment or inability to complete questionnaires to ensure data validity.
Ensure patient access to internet and electronic devices to avoid selection bias in ePROM implementation.
Patient & Prescribing Data
Adult patients undergoing radical prostatectomy, radical cystectomy, or partial/radical nephrectomy at a German university hospital
Routine use of the German CARE questionnaire as an ePROM enables detailed assessment of postoperative recovery, facilitating improved symptom control and potentially reducing emergency visits and readmissions.
Clinical Best Practices
Translate and validate PROM tools carefully with back-translation and expert review to ensure linguistic and conceptual accuracy.
Introduce user-friendly electronic platforms with patient education to maximize questionnaire completion rates.
Collect PROM data at multiple time points (preoperative, discharge, 6 weeks postoperative) for comprehensive recovery assessment.
Incorporate PROM results into clinical decision-making to tailor postoperative care and identify patients needing additional support.
by Frederik Wessels, Maximilian Lenhart, Manuel Neuberger, Julia Mühlbauer, Johannes Huber, Johannes Breyer, Philipp Nuhn, Maurice S. Michel, Julian Koenig, Maximilian C. Kriegmair
