Clinical Scorecard: A Framework for Transitioning Care from Pediatric to Adult Services in Patients with Inborn Errors of Immunity

At a Glance

Key Highlights

• Transition planning should begin around age 14 with a multidisciplinary team.
• Standardized clinical documentation and transition reports are essential.
• Monitoring of infection rates and patient-reported quality of life is crucial.
• Immunoglobulin replacement therapy options include intravenous, subcutaneous, and facilitated subcutaneous methods.
• Empowerment of patients and caregivers is a fundamental element of the transition process.

Guideline-Based Recommendations

Diagnosis

• Early identification of patients suited for transition is critical.

Management

• Implement a structured, multidisciplinary transition protocol.

Monitoring & Follow-up

• Regular evaluation of individual needs and follow-up adherence.

Risks

• Insufficient transition practices can lead to medical complications and diminished long-term outcomes.

Patient & Prescribing Data

Individuals with Inborn Errors of Immunity transitioning from pediatric to adult care.

Immunoglobulin replacement therapy should be tailored based on patient requirements and developmental stage.

Clinical Best Practices

• Establish a dedicated multidisciplinary team for continuity of care.
• Ensure efficient communication between pediatric and adult healthcare providers.
• Address psychosocial difficulties during the transition process.

Related Resources & Content

• International Union of Immunological Societies (IUIS)