To evaluate the training adequacy, job satisfaction, and retention of Clinical Research Coordinators (CRCs) in frontotemporal degeneration (FTD) research.
Approach:
Survey Methodology: An anonymous cross-sectional online survey was administered by the Association for Frontotemporal Degeneration (AFTD) to CRCs in research networks across the USA and Canada.
Key Findings:
62% of CRCs felt insufficiently prepared for their roles.
Critical areas of training deficiency included genetics, symptom management, and brain donation.
Retention was linked to competitive compensation and clear career advancement opportunities.
Interpretation:
AFTD is developing modular training to enhance CRC competency, indicating a need for structured orientation and emotional support systems for CRCs working with FTD patients and families.
Limitations:
The study had a small sample size of 37 CRCs.
Responses were limited to those who chose to participate in the survey.
Conclusion:
The findings highlight the necessity for improved training and support for CRCs in FTD research to enhance participant experience and retention.
