Digital Health Intervention to Promote Lifelong Specialized Care in Adults With Congenital Heart Disease: Theory-Driven Community Co-Designed Study - Summary - MDSpire

Digital Health Intervention to Promote Lifelong Specialized Care in Adults With Congenital Heart Disease: Theory-Driven Community Co-Designed Study

  • By

  • Anushree Agarwal

  • Joseph Valente

  • Karina Buenrostro

  • Katelyn Macholl

  • Juhi Mehta

  • Keerthana Reddy

  • Karina Manayan

  • Parang Kim

  • Aleah Sparks

  • Kunyi Li

  • Pranav Ahuja

  • Kevin Sun

  • Kimberly Payton

  • Mark D Norris

  • Katia Bravo-Jaimes

  • Leigh Reardon

  • Philip Moons

  • Megumi J Okumura

  • Gregory M Marcus

  • Michelle Gurvitz

  • June 23, 2026

  • 0 min

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Objective:

To describe a theory- and community-driven approach to designing a scalable digital health intervention to promote care for adults with congenital heart disease (ACHD).

Approach:
  • Intervention Development Process: The development process integrated behavioral frameworks with community-engaged research, including focus groups and semistructured interviews, to identify and refine intervention components.
Key Findings:
  • Up to 85% of patients with ACHD experience gaps in receiving specialized care.
  • Existing interventions are often clinic-based, resource-intensive, and limited in scope.
  • Web- and mobile-based solutions can engage patients outside of clinic visits and are widely accepted by patients.
Interpretation:

Limitations:
  • The intervention's effectiveness in real-world settings has not yet been evaluated.
  • The study may not address all individual patient needs due to its design.
Conclusion:

The approach aims to inform the development of interventions for ACHD and other chronic conditions.

Original Source(s)

Digital Health Intervention to Promote Lifelong Specialized Care in Adults With Congenital Heart Disease: Theory-Driven Community Co-Designed Study

  • by Anushree Agarwal, Joseph Valente, Karina Buenrostro, Katelyn Macholl, Juhi Mehta, Keerthana Reddy, Karina Manayan, Parang Kim, Aleah Sparks, Kunyi Li, Pranav Ahuja, Kevin Sun, Kimberly Payton, Mark D Norris, Katia Bravo-Jaimes, Leigh Reardon, Philip Moons, Megumi J Okumura, Gregory M Marcus, Michelle Gurvitz

  • June 23, 2026

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