Associations with the quality of life of adult family members or partners (informal carers) of people with leukaemia: results from a cross-sectional online global survey - Summary - MDSpire

Associations with the quality of life of adult family members or partners (informal carers) of people with leukaemia: results from a cross-sectional online global survey

  • By

  • Alan J. Poots

  • Samantha Nier

  • Sarah Gunn

  • Sam Salek

  • June 22, 2026

  • 0 min

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Objective:

To explore and quantify the impact on the quality of life (QoL) of adult family members or partners of persons living with acute or chronic leukaemia.

Approach:
    Key Findings:
    • Median FROM-16 score was 14; 38% of respondents scored above the critical threshold of 17.
    • Acute leukaemia caregivers had a median score of 16, while chronic leukaemia caregivers had a median score of 8, with a moderate-to-large effect size (η2 = 0.122, p = 2.92E−15).
    • Higher caregiving hours correlated with greater FROM-16 scores, indicating lower QoL, with large effect sizes in both groups (acute: η2 = 0.130, chronic: η2 = 0.232).
    Interpretation:

    Limitations:
    • The study utilized convenience sampling, which may limit the generalizability of the findings.
    • The reliance on self-reported measures may introduce bias.
    Conclusion:

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