Geographical and Language-Based Factors Associated with Neurodevelopmental Follow-Up in Children with Congenital Heart Disease - Summary - MDSpire

Geographical and Language-Based Factors Associated with Neurodevelopmental Follow-Up in Children with Congenital Heart Disease

  • By

  • Lorena Galvan

  • Marshall Brown

  • Marnina Gottesman

  • Melissa Hathaway

  • Titus Chan

  • June 29, 2026

  • 0 min

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Objective:

To assess the association between geographical and language-based factors and CNC attendance, and to evaluate if in-hospital interpreter usage and community socioeconomic characteristics are associated with improved CNC attendance.

Approach:
  • Study Design: A single site retrospective cross-sectional study was conducted at a tertiary-care children's hospital, approved by the institutional review board without the need for consent.
  • Study Population: Included infants and children born between 2018 and 2023 who underwent cardiac surgery before 1 year of age, excluding those who died, underwent heart transplant, or had specific genetic differences.
  • Outcome: The primary outcome was attendance at CNC prior to 12 months of age, capturing early neurodevelopmental delays.
  • Variables: Independent variables included travel distance, area deprivation index, primary language preference, and use of interpretation services.
Key Findings:
  • CNC attendance rates during toddler age are approximately 30%.
  • Factors affecting CNC attendance include scheduling process, travel distance, and insurance status.
  • Sociodemographic factors are associated with non-attendance.
  • The impact of language preference and neighborhood resources on CNC attendance remains unclear.
Interpretation:

The study aims to clarify the role of geographic and linguistic factors in CNC attendance.

Limitations:
  • Single site study may limit generalizability.
  • Exclusion of certain patient populations may affect findings.
Conclusion:

The study seeks to identify barriers to CNC attendance related to geographic and linguistic factors, which could inform future interventions.

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