Healthcare professionals’ perspectives on the challenges faced by parents of children with autism and recommendations to address them: a qualitative study in Hong Kong - Summary - MDSpire
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Healthcare professionals’ perspectives on the challenges faced by parents of children with autism and recommendations to address them: a qualitative study in Hong Kong
To explore healthcare professionals’ (HCPs) perspectives on the challenges and needs of parents caring for children with autism spectrum disorder (ASD).
Approach:
Study Design: In-depth individual and group interviews were conducted with 16 HCPs with over 10 years’ experience working closely with children with autism and their families.
Data Analysis: Data was coded inductively and analysed using reflective thematic analysis.
Misunderstanding about ASD and its management is a significant challenge.
Acknowledgement and acceptance of the ASD diagnosis are crucial for parents.
HCPs provided recommendations for parents and caregivers, highlighting the need to strengthen relational skills to connect with their children, take their child’s perspective and show appreciation and affection for their child’s strengths.
Interpretation:
HCPs observed that challenges faced by parents are often shaped by misinformation and misinterpretation of child behaviours and needs, as well as unrealistic expectations based on stereotypes.
Limitations:
The study is limited to a specific geographical context (Hong Kong).
Findings may not be generalizable to all populations or healthcare systems.
Conclusion:
Findings from this study highlighted the need for psychoeducation to support parents and caregivers of children with ASD.