To inform about Tennessee's plan to share data of children with disabilities enrolled in the CSS program with immigration enforcement agencies.
Approach:
Data Sharing Notification: Families of approximately 400 children received notices regarding potential data sharing with immigration authorities if they remain enrolled in the CSS program beyond June 30, 2026.
Legal Action: A temporary restraining order was issued on June 24, 2026, to prevent the data sharing following a lawsuit by physicians.
Legislation Overview: Tennessee law requires verification of immigration status for public benefit applicants and mandates reporting of non-lawfully present individuals to immigration enforcement.
CSS Program Details: The CSS program provides services to children under 21 with disabilities and does not have immigrant eligibility restrictions.
Impact on Families: Health care providers warn that data sharing could lead to families withdrawing from the program, risking care disruptions.
National Survey Data: A KFF survey indicated increased avoidance of government programs among immigrant adults due to fears about immigration status disclosure.
Federal Data Sharing Agreement: In July 2025, CMS and ICE established an agreement allowing access to Medicaid enrollees' personal data for immigration enforcement.
Key Findings:
Tennessee's CSS program may be affected by new immigration-related data sharing requirements.
A temporary restraining order currently halts the data sharing initiative.
Legislation mandates verification of immigration status for public benefits.
Concerns exist regarding the chilling effect on enrollment in public benefit programs among immigrant families.
Interpretation:
Limitations:
The article does not provide specific outcomes from the temporary restraining order.
Data on the long-term effects of the legislation on enrollment in the CSS program is not available.
The expanded indication is supported by pharmacokinetic, safety, tolerability, exploratory efficacy, and long-term safety data from studies in children aged 2 to 5 years.