Artificial Intelligence–Based Online Symptom Assessment Tools for Systemic Lupus Erythematosus Diagnosis: Patient Perspectives - Summary - MDSpire
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Patient Insights on Online Symptom Assessment Tools Utilizing Artificial Intelligence for Diagnosing Systemic Lupus Erythematosus

  • By

  • Olivia A. Stein

  • Jennifer L. F. Lee

  • Evelyne Vinet

  • Arielle Mendel

  • Christian A. Pineau

  • Fares Kalache

  • Louis-Pierre Grenier

  • Sasha Bernatsky

  • May 28, 2026

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Objective:

To explore the benefits, limitations, and concerns perceived by patients with systemic lupus erythematosus (SLE) regarding AI symptom assessment tools in the context of their diagnostic experiences.

Approach:
  • Focus Group Study: Conducted four virtual focus groups with adults from the McGill University Health Centre SLE research cohort to gather patient insights.
Key Findings:
  • Patients reported significant delays in SLE diagnosis, affecting care and outcomes.
  • Participants expressed mixed feelings about the usefulness of AI symptom assessment tools, citing concerns about accuracy and trust.
  • There is a need for AI tools to better align with the complexities of chronic diseases like SLE.
Interpretation:

The study highlights the challenges patients face in obtaining timely diagnoses and acknowledges the limitations of AI tools in addressing these issues.

Limitations:
  • The study was limited to a specific cohort from Montreal, which may not represent the broader population.
  • Focus group discussions may not capture all patient experiences or perspectives.
Conclusion:

AI symptom assessment tools require improvements to better meet the needs of patients with complex conditions like SLE.

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