Positioning equity at the core of European dementia research: a pan-European co-produced perspective from the PANEUCARE consortium - Summary - MDSpire
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Centering Equity in European Dementia Research: A Collaborative Perspective from the PANEUCARE Consortium

  • By

  • Maria Isabel Cardona

  • Clarissa Giebel

  • Anthony Scerri

  • Anthea Innes

  • Ninoslav Mimica

  • Osman Kučuk

  • T. Rune Nielsen

  • Jūratė Macijauskienė

  • Birute Bartkevičiūtė

  • Carolien Smits

  • Carmel Geoghegan

  • Soraya Moradi-Bachiller

  • Anne Marie Rokstad

  • Iva Holmerova

  • Elżbieta Trypka

  • Ágnes Egervári

  • Raluca Sfetcu

  • Marija Taneska

  • Péter Hegedűs

  • Iryna Shevchenko

  • Svetlana Iloski

  • Thanos Chatzikostopoulos

  • Jochen René Thyrian

  • August 31, 2026

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Objective:

To identify priorities for a fairer dementia research landscape across Europe by integrating professional expertise with the views of people living with dementia and caregivers.

Approach:
  • Methodology: The PANEUCARE consortium employed a co-produced methodology involving workshops with dementia professionals and consultation groups with people living with dementia and caregivers.
Key Findings:
  • Marked regional variation exists in research participation, funding, and care practices across Europe.
  • Common challenges include workforce shortages, delayed diagnosis, fragmented care pathways, caregiver burden, and underrepresentation of Southern and Eastern European settings.
  • Locally developed innovations demonstrate resilience and potential for cross-regional learning.
  • Future research priorities include cross-regional collaboration, workforce development, culturally sensitive care, enhanced caregiver support, and inclusive research participation.
Interpretation:

The findings contributed to the creation of the EQUITABLE framework, which offers actionable guidance for inclusive and context-sensitive dementia research in Europe.

Limitations:
  • The study may not fully capture all regional variations due to the limited representation of certain countries.
  • The reliance on self-reported experiences may introduce bias.
Conclusion:

The PANEUCARE consortium highlights the importance of integrating diverse perspectives to support a more equitable and responsive dementia research landscape in Europe.

Original Source(s)

Positioning equity at the core of European dementia research: a pan-European co-produced perspective from the PANEUCARE consortium

  • by Maria Isabel Cardona, Clarissa Giebel, Anthony Scerri, Anthea Innes, Ninoslav Mimica, Osman Kučuk, T. Rune Nielsen, Jūratė Macijauskienė, Birute Bartkevičiūtė, Carolien Smits, Carmel Geoghegan, Soraya Moradi-Bachiller, Anne Marie Rokstad, Iva Holmerova, Elżbieta Trypka, Ágnes Egervári, Raluca Sfetcu, Marija Taneska, Péter Hegedűs, Iryna Shevchenko, Svetlana Iloski, Thanos Chatzikostopoulos, Jochen René Thyrian

  • August 31, 2026

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