“Do It by Myself” or Autonomy, Participation, and Assistive Devices and Technology Needs of Children and Youth With Disabilities: Text Mining Analysis of a National Survey in France - Summary - MDSpire

“Do It by Myself” or Autonomy, Participation, and Assistive Devices and Technology Needs of Children and Youth With Disabilities: Text Mining Analysis of a National Survey in France

  • By

  • Johanne Mensah Gourmel

  • Maxime Bourgain

  • Maxime Galloy

  • Mario Veruete

  • Gwenaël Cornec

  • Sylvain Brochard

  • Christelle Pons

  • Arriel Benis

  • July 8, 2026

  • 0 min

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Objective:

To uncover actionable knowledge related to difficult life situations for which innovative solutions could be useful, complementing previous human-led qualitative research.

Approach:
  • Survey Development: Developed the 'Innovation for Participation' survey targeting children and youth with disabilities, their relatives, and professionals involved in their care to identify activity limitations and participation restrictions.
  • Data Analysis: Utilized French-language text mining techniques to analyze survey responses, aiming to reveal insights and compare perspectives among children, relatives, and professionals.
Key Findings:
  • Difficulties in participation were frequently highlighted, particularly in recreational activities, mobility, and social interactions, as revealed through text mining analysis.
  • Proposed solutions included personal assistive devices, high-tech devices, and adaptations to the environment, reflecting the needs expressed by participants.
  • Human assistance in daily life was emphasized as a necessity, indicating a gap in available support.
Interpretation:

The study aimed to enrich understanding of the needs of children and youth with disabilities through a combined qualitative and text mining approach, highlighting the value of integrating user perspectives.

Limitations:
  • The study was based on a French-language survey, which may limit the applicability of findings to non-French speaking contexts.
  • Challenges included ensuring comprehensive engagement across diverse disability types and the potential biases in self-reported data.
Conclusion:

The findings highlight the importance of user engagement in the development of assistive technologies and demonstrate the potential of text mining to uncover actionable insights.

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