Adolescents and young adults with predominantly low grade primary central nervous system tumors: patient reported socioeconomic outcomes and health-related quality of life ten years after diagnosis - Summary - MDSpire

Adolescents and young adults with predominantly low grade primary central nervous system tumors: patient reported socioeconomic outcomes and health-related quality of life ten years after diagnosis

  • By

  • Mayen, Thomas

  • Morelle, Magali

  • Zouaoui, Sonia

  • Kallel, Mazen

  • Lemée, Jean Michel

  • Saadoun, Audrey

  • Cebula, Hélène

  • Aouaissia, Sandra

  • Al Awadhi, Abdullah

  • Leclerc, Arthur

  • Herbrecht, Anne

  • Boetto, Julien

  • Darlix, Amélie

  • Rigau, Valérie

  • Trétarre, Brigitte

  • Roujeau, Thomas

  • Bauchet, Luc

  • Moumjid, Nora

  • March 5, 2026

  • 0 min

Share

Objective:

To analyze long-term socioeconomic outcomes, including education, employment, and income, as well as health-related quality of life (HRQoL) in adolescents and young adults (AYAs) treated for primary central nervous system tumors (PCNST) during the AYA period.

Key Findings:
  • AYAs with PCNST face significant long-term socioeconomic challenges, including disruptions in education and unstable employment, which can hinder their future opportunities.
  • The study highlights the need for targeted interventions to support AYAs in achieving educational and professional goals post-diagnosis.
  • HRQoL is adversely affected in this population, consistent with existing literature, indicating a critical area for support.
Interpretation:

The findings underscore the importance of addressing the long-term socioeconomic and quality of life issues faced by AYAs with PCNST. There is a clear need for tailored support systems to assist these individuals in overcoming challenges.

Limitations:
  • The study is retrospective and may be subject to recall bias in self-reported data, potentially affecting the accuracy of socioeconomic assessments.
  • The sample size may limit the generalizability of the findings, suggesting caution in applying results to broader populations.
Conclusion:

Long-term follow-up and support for AYAs with PCNST are crucial to mitigate socioeconomic challenges and improve HRQoL outcomes.

Original Source(s)

Adolescents and young adults with predominantly low grade primary central nervous system tumors: patient reported socioeconomic outcomes and health-related quality of life ten years after diagnosis

  • by Mayen, Thomas, Morelle, Magali, Zouaoui, Sonia, Kallel, Mazen, Lemée, Jean Michel, Saadoun, Audrey, Cebula, Hélène, Aouaissia, Sandra, Al Awadhi, Abdullah, Leclerc, Arthur, Herbrecht, Anne, Boetto, Julien, Darlix, Amélie, Rigau, Valérie, Trétarre, Brigitte, Roujeau, Thomas, Bauchet, Luc, Moumjid, Nora

  • March 5, 2026

Related Content

AI Scribes: Efficiency for Whom?

Unresolved safety, privacy, and regulatory concerns may limit benefits of AI scribes for physicians and patients.

Americans trust Fauci more than RFK Jr.

Texas Emerges as Focus of New Trump Administration Actions to Limit Gender-Affirming Care