To capture the experiences of thousands of people living with or being monitored for glaucoma through the largest patient insight survey in the UK.
Approach:
Survey Launch: The National Patient Voices Survey opened on 6 July and runs until 6 September 2026, aiming to gather insights from around 10,000 participants.
Partnerships: The survey is developed in partnership with the Picker Institute and endorsed by major eye health organizations.
Key Findings:
Research from Moorfields Eye Hospital and University College London estimates that more than one million adults aged 40 and over in the UK are living with glaucoma, with around half currently undiagnosed.
The same research predicts the number of people affected could rise by 60% by 2060, reaching 1.61 million.
Interpretation:
The survey aims to create an evidence base to inform glaucoma services and ensure patient perspectives are included in care decisions.
Limitations:
The survey's success depends on the engagement of healthcare professionals to reach a diverse patient population.
Conclusion:
The survey is seen as a significant initiative for glaucoma patients and care in the UK.
