Development of the Mainz Resilience Assessment for Pediatric Cancer: A New Age-Specific Patient-Reported Outcome Tool to Evaluate Resilience in Young Cancer Patients - Summary - MDSpire
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Development of the Mainz Resilience Assessment for Pediatric Cancer: A New Age-Specific Patient-Reported Outcome Tool to Evaluate Resilience in Young Cancer Patients
To develop an age-specific, disease-specific tool for assessing resilience in children and adolescents undergoing cancer treatment, emphasizing the need for real-time assessment during treatment.
Key Findings:
Existing resilience research in pediatric oncology primarily focuses on long-term survivors, leaving a gap in understanding resilience during active treatment, particularly in real-time contexts.
Current self-report measures for assessing resilience in children with cancer lack psychometric robustness and disease specificity, with many instruments failing to support reliable measurement of resilience processes.
There is a need for a validated, cancer-specific self-report tool that captures dynamic changes in resilience during treatment, supported by specific examples or data.
Interpretation:
The development of a new resilience assessment tool is crucial for understanding and supporting the mental health of young cancer patients throughout their treatment journey, with potential direct impacts on patient care.
Limitations:
Current research predominantly relies on retrospective assessments, limiting insights into real-time resilience dynamics and introducing potential biases in self-reporting.
Existing measures often fail to capture the complexity of coping strategies employed by children during treatment.
Conclusion:
A dedicated resilience assessment tool can enhance the understanding of psychosocial adaptation in pediatric oncology, enabling targeted interventions for those at risk of persistent distress and paving the way for future research directions.
by Marie A. Neu, Franziska Ortmüller, Abigale L. Robinson, Elias Dreismickenbecker, Henrike Otto, Lena Wypyrsczyk, Mareike Kühn, Michèle Wessa, Oliver Tüscher, Joerg Faber
