Navigating through the care of children with autism spectrum disorder: parents’ lived experiences in a Ghanaian Regional Hospital - Summary - MDSpire

Navigating through the care of children with autism spectrum disorder: parents’ lived experiences in a Ghanaian Regional Hospital

  • By

  • Crescensia Baarkoh

  • Akua Afriyie Nkrumah

  • Richard Kwaku Bawah

  • Solomon Suglo

  • May 29, 2026

  • 0 min

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Objective:

To explore the lived experiences of parents caring for children living with autism spectrum disorder at the Greater Accra Regional Hospital.

Approach:
  • Research Method: An explorative qualitative research approach was employed, using purposive sampling to interview 10 parents of children with autism spectrum disorder.
  • Data Collection: Data were collected using an interview guide and analyzed through thematic content analysis.
Key Findings:
  • Parents face profound emotional, social, psychological, and financial challenges.
  • Many participants reported experiences of stigma, spiritual accusations, and marital difficulties associated with caregiving.
  • Parents demonstrated resilience through coping strategies, including behavioral adaptations, reliance on faith, and consciously disregarding negative societal attitudes.
Interpretation:

The findings highlight the need for comprehensive support systems, including psychological counseling, marital therapy, and rehabilitation support services, to assist parents in navigating the complex challenges of caregiving.

Limitations:
  • The study's sample size was limited to 10 parents, which may not represent the broader population.
  • The findings are context-specific to Ghana and may not be generalizable to other regions.
Conclusion:

These findings highlight the need for coordinated support systems to reduce parental burden and enhance well-being.

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