Integrating Patient-Reported Quality Measures in Systemic Lupus Erythematosus: Development of the American College of Rheumatology Implementation Guide - Summary - MDSpire
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Incorporating Patient-Reported Quality Metrics in Systemic Lupus Erythematosus: Creation of the Implementation Guide by the American College of Rheumatology

  • By

  • Catherine Nasrallah

  • Cherish Wilson

  • Christine Hariz

  • Christie M. Bartels

  • Shanthini Kasturi

  • Wambui Machua

  • Amy Bennett

  • Kate Chiseri

  • Allison Plitman

  • Starla Hairston Blanks

  • April Jorge

  • Patti Katz

  • Jinoos Yazdany

  • Shivani Garg

  • April 29, 2026

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Objective:

To investigate the successes and challenges of implementing patient-reported outcome measures (PROMs) in systemic lupus erythematosus (SLE) clinical care and to develop an implementation guide for their integration.

Approach:
  • Study Design: Qualitative semistructured interviews guided by the Consolidated Framework for Implementation Research (CFIR) were conducted with clinicians and practice staff from five rheumatology practices.
  • Data Collection: Practices implemented workflows to collect SLE PROMs for at least 50 consecutive patients, focusing on physical function and depression assessments.
  • Implementation Guide Development: A consensus-building approach was used to synthesize findings and create the SLE Quality Measures Implementation Guide, an open-source resource for integrating PROMs into routine practice.
Key Findings:
  • Barriers and facilitators to PROM collection were identified through qualitative interviews with practice staff.
  • The SLE Quality Measures Implementation Guide provides practical strategies for integrating PROMs into clinical workflows.
Interpretation:

Incorporating PROMs into SLE care can enhance understanding of patient experiences and improve clinical decision-making.

Limitations:
  • The study was limited to five practices, which may not represent all rheumatology settings.
  • Data collection was restricted to a specific electronic health record system, potentially affecting generalizability.
Conclusion:

The study provides a framework for the implementation of PROMs in clinical practice.

Sources:

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