To examine how parents of children with medical complexity interpret their caregiving experiences and how these interpretations shape their orientations toward life-sustaining treatment (LST) decision-making during clinical deterioration.
Key Findings:
Shared decision-making is preferred by parents but is emotionally demanding and shaped by evolving values.
Interpretation:
Limitations:
The study's findings may not be generalizable beyond the specific cultural and institutional context of Taiwan.
Member checking was not conducted to avoid emotional distress for participants.
