To evaluate the association between coping strategies and transition readiness scores in young adults with sickle cell disease (SCD).
Approach:
Study Design: Cross-sectional study using baseline data from the COMETS trial, focusing on young adults aged 17 to 28 transitioning to adult SCD care.
Participants: Participants were recruited from five institutions and planned to transition to an adult SCD clinic within 12 months.
Measures: Utilized the Transition Readiness Assessment Questionnaire (TRAQ) and the Medical Outcome Study–Social Support Survey (MOS-SSS) emotional/information subscale.
Key Findings:
Positive coping strategies are associated with higher transition readiness scores in chronic conditions based on previous research.
Short-term efficacy of transition navigators has been noted in supporting patients with SCD during the transition process.
Older patients tend to develop better coping strategies and demonstrate higher transition readiness.
Interpretation:
The study hypothesizes a correlation between positive coping strategies, better social support, and higher transition readiness scores in young adults with SCD.
Limitations:
The study is a secondary analysis and may not capture all variables influencing transition readiness, potentially limiting the comprehensiveness of the findings.
Specific data on the impact of emotional or educational social support on transition readiness in SCD has not been previously examined.
Conclusion:
The findings aim to enhance understanding of how coping strategies and social support can facilitate the transition from pediatric to adult care in young adults with SCD.
by Apoorva S. Iyengar, Tanisha Belton, Jack Chen, Tisheya Ward, Olivia Teng, Banu Aygun, Abena Appiah-Kubi, Nataly Apollonsky, Donna Boruchov, Biree Andemariam, Omar Niss, Lori E. Crosby, Lisa Schwartz, Lamia Barakat, Kim Smith-Whitley, Sophia Jan, Caren Steinway