Examining TikTok's Influence on Hidradenitis Suppurativa Education Among Individuals with Skin of Color: A Cross-Sectional Study - Summary - MDSpire

Examining TikTok's Influence on Hidradenitis Suppurativa Education Among Individuals with Skin of Color: A Cross-Sectional Study

  • By

  • Arsema K Zadu

  • Jordan Young

  • Janyla A Seltzer

  • Angel S Byrd

  • Cheri Frey

  • February 27, 2026

  • 0 min

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Objective:

To evaluate the primary sources of education on hidradenitis suppurativa (HS) in Black skin on TikTok, focusing on the platform's role in disseminating information.

Key Findings:
  • 48% of videos were created by patients, 20% by board-certified dermatologists, and 14% by board-certified plastic surgeons. 70% of videos focused on treatment content, while 28% explained HS, highlighting a gap in professional input.
Interpretation:

There is a significant gap between medically accurate education and patient experiences on TikTok, underscoring the need for increased professional involvement in content creation.

Limitations:
  • The study analyzed a limited number of videos (50), which may not represent the entire TikTok landscape, and content may evolve rapidly.
Conclusion:

Dermatologists have an opportunity to engage with patients on TikTok by providing evidence-based guidance and addressing patient experiences and alternative remedies.

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